thyroid cancer

i found out 2 week before xmas i had thyoid cancer then they just left me to it ,just got a date on saturday im going back in for another operation in 2 weeks why do these things always happen to the good ones.the stress of all the waiting i no i will be fine its just the fear of the unknown ,i had the lump for 13 years i never ever thought i would get cancer ,i think its harder on the family i feel i need to stay stong for the ,xx

Parents
  • i got my son back wat a happy time ,ive bn on my liothyronine for my first week out of hospital 3tabs a day then i went to the doctors on friiday on got another prescription and my doctor thought i was to get one a day so i thought that was normal o my god was i the doctor so wrong the pains in my head i was dizzy feeln sick n tired so on wednesday i called the doctor and she phoned the hospital and it was 3 a day i was to be one so at the moment not feeling very good or happy wat a mistake to make messing with me like that ,

  • I also took 3 Liothyronine tablets after RAI which I took for 3 months. Don't know how I'd have coped on one a day!!!

    Then I had my follow-up scan so had to come off them again for 2 weeks. (I was a bit surprised about the scan, didn't remember being told about at the beginning but I guess I just forgot!)

    This time, I went up to the hospital and had another "drink" but it was only a tiny percentage of the previous amount of RAI and I could go home. So I had my scan a few days later and didn't hear anything until my next review, when they said it had been okay. I wasn't off work before the scan but I wish I had stayed off as I did feel really tired off meds.

    That was over 6 months ago and there's been no mention of any more scans, so fingers crossed.....

    After the review scan, I was at last changed from liothyronine to 100mg thyroxine which feels fine.

    Hope you feel better on the proper dose. good luck.

  • hi ther how are you ,just a wee question for you ,wen u got out of hospital n u wer on ur liothyronine how long did it take for you energy level to get back to normal ,i still get really tired and most days my body aches with pain mainly my bones on my face and i get really sore heads did u have any of these symtoms,it would just be good to get the body back to normal ,

  • Hi bubblymags,

    After getting out of hospital I was exhausted for a week, then the second week I felt a bit better. Because no one suggested staying off work any longer, I went back to work after two and a half weeks and gradually felt back to normal after maybe a month. But everyone seems to take a different amount of time to feel normal.

    There seem to be various possible side effects (although I think I've been quite lucky and not had any). Over on another forum, a girl who recently had RAI is getting pain in her neck and I think her ears, and also lost her sense of taste. Someone else got a blocked salivary gland. Others have also mentioned dry skin and hair and weight gain. Could be I'm just used to being tired though, cos I don't feel I've had much energy for years!!!!

    I definitely feel better on Thyroxine than I did on Liothyronine, which gave me a really fast pulse and heartrate, but my medication wasn't changed until after my follow up scan 3 months later. Your consultant will recommend a dose for you (maybe 100 or 150mg) and will alter it according to your blood results.

    Mention your symptoms to your consultant, they might be quite common and they'll be able to advise you. x

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  • Hi bubblymags,

    After getting out of hospital I was exhausted for a week, then the second week I felt a bit better. Because no one suggested staying off work any longer, I went back to work after two and a half weeks and gradually felt back to normal after maybe a month. But everyone seems to take a different amount of time to feel normal.

    There seem to be various possible side effects (although I think I've been quite lucky and not had any). Over on another forum, a girl who recently had RAI is getting pain in her neck and I think her ears, and also lost her sense of taste. Someone else got a blocked salivary gland. Others have also mentioned dry skin and hair and weight gain. Could be I'm just used to being tired though, cos I don't feel I've had much energy for years!!!!

    I definitely feel better on Thyroxine than I did on Liothyronine, which gave me a really fast pulse and heartrate, but my medication wasn't changed until after my follow up scan 3 months later. Your consultant will recommend a dose for you (maybe 100 or 150mg) and will alter it according to your blood results.

    Mention your symptoms to your consultant, they might be quite common and they'll be able to advise you. x

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