Hello Lee

First a big virtual hug.

I really feel what you are going through, its not just sometimes it is sh_ it. Its full time, everyday sh-it. I put on a brave face I tell everyone I'm top of the world to spare their feelings. OK I can function quite well albeit with pain but inside Im reminded that everything is not quite right. Recent scan is good with no progression in spine but new areas of cancer in pelvis and small lung nodule. The hospital visits over 100 in the last 2 years are more wearying than the 36 infusion treatments. You mentioned some time ago that. the hospital had changed the brand of Denosumab Xgeva to another biosimilar drug and you had problems since then. I noticed my last Denosumab injection I had was from a different looking pre filled syringe. I have not noticed any new symptoms. Is you stomach pain related to the cancer in your spine or do you think it is related to the Denosumab. I finish immunotherapy quite soon but am assured that its effect will be enduring. This makes me quite anxious but the Denosumab will continue for life. I hope that tomorrow brings some uplifting experience to bring a smile to your face and some hope for the future.

My break to Brittany although tiring was just what I needed, mostly sunny warm days gentle sightseeing with a visit to old friends. Looking forward to Autumn woodland walks harvesting potatoes, squashes and late flush vegetables in the kitchen garden and preparing ground for new crops. The yearly cycle keeps me alive and kicking.

Dont throw in the towell or give up Lee there are more good experiences to be had even though today is sh_it.

Ed x

Hello Lee

First a big virtual hug.

I really feel what you are going through, its not just sometimes it is sh_ it. Its full time, everyday sh-it. I put on a brave face I tell everyone I'm top of the world to spare their feelings. OK I can function quite well albeit with pain but inside Im reminded that everything is not quite right. Recent scan is good with no progression in spine but new areas of cancer in pelvis and small lung nodule. The hospital visits over 100 in the last 2 years are more wearying than the 36 infusion treatments. You mentioned some time ago that. the hospital had changed the brand of Denosumab Xgeva to another biosimilar drug and you had problems since then. I noticed my last Denosumab injection I had was from a different looking pre filled syringe. I have not noticed any new symptoms. Is you stomach pain related to the cancer in your spine or do you think it is related to the Denosumab. I finish immunotherapy quite soon but am assured that its effect will be enduring. This makes me quite anxious but the Denosumab will continue for life. I hope that tomorrow brings some uplifting experience to bring a smile to your face and some hope for the future.

My break to Brittany although tiring was just what I needed, mostly sunny warm days gentle sightseeing with a visit to old friends. Looking forward to Autumn woodland walks harvesting potatoes, squashes and late flush vegetables in the kitchen garden and preparing ground for new crops. The yearly cycle keeps me alive and kicking.

Dont throw in the towell or give up Lee there are more good experiences to be had even though today is sh_it.

Ed x