Neuropathy

Hi I have neuropathy in my hands and feet caused by chemotherapy I’m now on immunotherapy and the neuropathy seems to be getting worse it’s spread up to my knees . Has anyone else experienced this? 

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  • Hi Robertson57, 

    Neuropathy can indeed be a challenging long-term side effect of cancer treatment often induced by chemotherapy and I have come across many members of our community who mentioned being affected by it. I am sorry to hear that immunotherapy has made it worse and it has now spread to your knees. 

    We have in-depth information on our website on nerve changes and cancer drugs which looks at the causes, symptoms and treatment for neuropathy and we also have useful tips to help you cope with nerve changes.

    Don't hesitate also to talk things through with our cancer nurses - they have a free helpline you can ring on 0808 800 4040 Monday to Friday from 9am to 5pm. You have also come to the right place to talk to others who have experienced this before and I hope that someone else who has suffered similar nerve issues before as a result of cancer treatment will come along and share their experience with you. I thought I would mention for example  's peripheral neuropathy thread and within that thread  also mentioned having neuropathy. I hope that you will get chatting on here soon with others who can relate to what you are going through. 

    Make sure you talk to your GP or medical team about the fact that it has been getting worse with immunotherapy and that it has now spread beyond your hands and feet to your knees as they might be able to suggest something that might help. 

    I will now let others who have dealt with neuropathy before come and say hello and share their experiences with you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

Reply
  • Hi Robertson57, 

    Neuropathy can indeed be a challenging long-term side effect of cancer treatment often induced by chemotherapy and I have come across many members of our community who mentioned being affected by it. I am sorry to hear that immunotherapy has made it worse and it has now spread to your knees. 

    We have in-depth information on our website on nerve changes and cancer drugs which looks at the causes, symptoms and treatment for neuropathy and we also have useful tips to help you cope with nerve changes.

    Don't hesitate also to talk things through with our cancer nurses - they have a free helpline you can ring on 0808 800 4040 Monday to Friday from 9am to 5pm. You have also come to the right place to talk to others who have experienced this before and I hope that someone else who has suffered similar nerve issues before as a result of cancer treatment will come along and share their experience with you. I thought I would mention for example  's peripheral neuropathy thread and within that thread  also mentioned having neuropathy. I hope that you will get chatting on here soon with others who can relate to what you are going through. 

    Make sure you talk to your GP or medical team about the fact that it has been getting worse with immunotherapy and that it has now spread beyond your hands and feet to your knees as they might be able to suggest something that might help. 

    I will now let others who have dealt with neuropathy before come and say hello and share their experiences with you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

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