Hi I have neuropathy in my hands and feet caused by chemotherapy I’m now on immunotherapy and the neuropathy seems to be getting worse it’s spread up to my knees . Has anyone else experienced this?
Neuropathy can indeed be a challenging long-term side effect of cancer treatment often induced by chemotherapy and I have come across many members of our community who mentioned being affected by it. I am sorry to hear that immunotherapy has made it worse and it has now spread to your knees.
Don't hesitate also to talk things through with our cancer nurses - they have a free helpline you can ring on 0808 800 4040 Monday to Friday from 9am to 5pm. You have also come to the right place to talk to others who have experienced this before and I hope that someone else who has suffered similar nerve issues before as a result of cancer treatment will come along and share their experience with you. I thought I would mention for example Pippin24 's peripheral neuropathy thread and within that thread leelaloo also mentioned having neuropathy. I hope that you will get chatting on here soon with others who can relate to what you are going through.
Make sure you talk to your GP or medical team about the fact that it has been getting worse with immunotherapy and that it has now spread beyond your hands and feet to your knees as they might be able to suggest something that might help.
I will now let others who have dealt with neuropathy before come and say hello and share their experiences with you.
Permanent neuropathy in the feet,it took about 2 years before l stopped tripping and constantly throwing myself to the ground, and nearer 3 for my brain to stop keep reminding me that my feet hurt.After that it gave up on me as a lost cause and now l am only aware of sore acheing tired feet when first going to bed. That said it is not resented since it keeps me reminded how lucky l am to still be here, to keep the memory of those who shared treatment alongside me that were not able to make it through, and finally to remind me that every day is special so l had better get on with it and make the most of every day----and l very much do.----hope in time you are able to do the same,
l should also say the neuropathy in my hands receeded with time and refusal on my part to back off using my hands, that said you took your life in your own hands if you got too close to me when l was using a hammer since l also had a fixed wrist ,limited grip with no feeling made for many excursions retrieving it..The most dangerous period was release at 12 -o- clock,moving forward to 0ne was a whole lot safer for me, but not for them around me,
What you have today is not what you might have tomorrow and it does not always have to move in a downward direction, l wish you well in the future,
thanks for replying to me again it’s very reassuring to hear how well you are doing I hope you are keeping well , I will stay strong and positive about the future
