Hi Kezzie75, 

It's great that you have a couple of people around you to chat to about this and I can imagine you understand each other deeply and are able to relate to each other and I hope that this forum will be an additional source of comfort and support and that you will hear from others who are also experiencing significant tiredness due to taking lenalidomide for myeloma. 

Feeling very tired as though you lack energy is certainly listed as a common side effect of Lenalidomide but it's certainly worth talking to your doctor or your consultant. It may be that they can help with some suggestions to help improve these things. Our page on lenalidomide suggests gentle exercise to help reduce tiredness - while making sure you balance it with plenty of rest time and it might also be worth reading our information on fatigue and cancer drugs. You're certainly not alone experiencing this and I hope that you will hear from other members of our community who have taken this drug before and that they will tell you more about what side effects they themselves experienced and whether fatigue was one of them. 

I have come across other members of our community who shared their experiences with lenalidomide and the side effects they experienced - it might not be exactly the same as you but always worth comparing notes!  Adnyl (Lynda) posted last year a thread about finding lenalidomide treatment difficult which you are welcome to respond to if you want. DSM also posted their story on getting side effects with lenalidomide after taking the drug for 3 years. 

It might be useful too to read our page on myeloma in particular on living with myeloma and if it would help to talk things through with one of our cancer nurses, they're available on 0808 800 4040, Monday to Friday from 9am to 5pm.

I will now let others who have been affected by myeloma and lenalidomide come and say hello and share their story with you. 

Best wishes, 

Lucie, Cancer Chat Moderator