Trodelvy followed by Enhertu - anyone had experience?

Hi,

I'm new to the forums.

I have secondary breast cancer with mets in skin and lung.  

I have recently been on Trodelvy for 3 cycles but the scan showed it hadn't helped, and I now have mets in the liver as well.  My oncology consultant is recommending that I go onto Enhertu. I tolerated Trodelvy well, with only minimal GI issues in cycle 1, and tiredness.  I am worried about the side effects of Enhertu and wonder if anyone has been on Trodelvy and then Enhertu, and what your experience was like?

Thanks in advance for any comments :) 

Parents
  • I’ve been on enhurtu just over a year for secondary breast cancer. Happy to answer any questions x x

  • Thank you so much lindsay1980.  I'm glad to hear from someone who has managed a year on Enhertu as I've read some posts from people who've not coped very well with it.

    Starting a new treatment is always daunting, with the unknown of how the side effects will make you feel.  My worst nightmare is nausea, so I was wondering how that's been for you?  I'm also concerned about ILD, which my consultant has highlighted, and wonder whether you have had any symptoms of that, and if so, how you've been monitored/managed?  Any insight gratefully received :) xx

  • I haven’t had any nausea at all but you are given anti sickness medication and steroids. It’s the fatigue that’s the worst for me but I can cope with that. I start to pick up after about 5 days xxx

Reply Children