Feeling scared for the future - stage 4 cancer can only be contained, not cured. Does anyone have any advice on how to cope in this situation?

I was diagnosed with stage 4 secondary peritoneal cancer in Jan 26, and the plan is to contain the cancer rather than cure it.

I've just got one more chemo cycle left to go, but I'm absolutely petrified of the future. I'm so scared that I'll have to keep putting my body and mind through continual treatments, and I don't know how to carry on my life as normal as I feel like I'm just going to be waiting for it to come back.

I know I have to live my life once the treatment has finished,  and not let it stop me, but I just don't know how.

If anyone in the same situation has any advise on how you cope I'd be so grateful. 

  • Hi Lou67 I am sorry to read about your diagnosis.  I have stage 4 breast cancer and have mets in pelvis, hips, spine, ribs and skull.  I was diagnosed in September 2024. It certainly is very scary and so much more so in the beginning.  My first oncology appointment he asked me what I knew about my cancer.  I said I know it is terminal.  He said no it is not terminal it is incurable but it is treatable.  As time has gone on it has got easier and I now realise I can live a good life for many years to come.  In the beginning I had counselling that Macmillan organised for me.  There are a lot of cancer charities out there with help available.  Maggies is a good one and Penny Brohn.  It is definitely good to speak to someone who is impartial and that way you can say what you feel in a safe space like on here.  I am on the Macmillan website.  There is a forum called Living with incurable cancer forum - patients only.  I am pretty sure there is someone on there who has the same cancer as you.  It is good to talk to people who understand.  I am happy to chat anytime.

    Lee x