A very warm welcome to the forum Tony, although I'm sorry to hear about the struggles you've been having since your radical cystectomy four months ago.
That feeling of making progress to then have a turn for the worse must be very frustrating so it's completely understandable why you're feeling fed up, especially if it's preventing you from doing much at the moment Tony, but fingers crossed that the good days will start to outweigh the bad and your recovery will start to improve.
Hopefully some of our members who have had this surgery will stop by soon to offer their support and share their experiences and advice but if it would help to talk any of this through with someone, then our cancer nurses are available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They will do all they can to support you and address your current concerns about your recovery.
Living with bladder cancer can be very tough, but we are here for you Tony and are sending all our strength and support your way.
