Rectal cancer diagnosis - overwhelmed by diagnosis and worried about having radiotherapy. How bad were the side effects?

Hello, I have recently been diagnosed with rectal cancer.  I am due to get a ct planning scan next week then start radiotherapy 2nd week in December and then chemotherapy in January before surgery.

I am very overwhelmed with my diagnosis and was reading about side effects of radiotherapy.  Has anyone had radiotherapy for rectal cancer and if so how bad were the side effects.  Thanks.

  • Hello Glen32

    I'm sorry to hear that you've recently been diagnosed with rectal cancer. It's understandable that you've been feeling overwhelmed and are feeling anxious about the possible side effects of radiotherapy. 

    It's important to remember that not everyone will experience the same level or kind of side effects. Hopefully treatment will be kind to you and any issues won't be too difficult to manage. Make sure you tell your treatment team about any concerns or problems you do have so that they can support you. 

    Hopefully some of our members who have had this treatment will post to share their tips and advice soon, but in the meantime, if you'd like to talk things through with one of our nurses you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to listen and offer any advice, information and support they can. 

    Keep in touch Glen32 and let us know how you get on. We're here for you. 

  • Hi Glen  I have terminal rectal cancer, just had a stoma  and will be having radiotherapy,  I had prostrate cancer 13 years ago and had 35 doses,it cured it but left a lot of scaring. It is tiring  but you will get used to it. 

    Regards

  • I’ve gone through tongue and neck Cancer treatment with Radiotherapy and Chemo and to be brutally honest it was just awful and after all that and after a Pet Scan I was diagnosed with Anul rectal/Pelvis Cancer and had to go through Chemo and Radiotherapy for a second time.It was to be fair horrendous as you lose all sense of being a human,your dignity is well and truely gone,but although the second lot of treatment was  as bad as the first,you do what you have to do to get better.

    I think if you keep a positive mind and have the support of friends and family,the Cancer Team are amazing.I pray you get to the other end of treatment with great news as I did.

    wishing you all the best on this difficult but achievable journey.

  • Bless you for being so brave

  • You are the brave one with out a doubt. 

  • Hello, my dad is currently going through this. So his treatment started with chemoradiotherapy for the 1st week, radiotherapy for the 2nd 3rd and 4th and then chemoradiotherapy for the final 5th week. Then he will need to wait for his surgery.  Hes just finished his 3rd week and he has done really well so far. Said hes been a little tired. Experienced some slight bleeding recently which is common after the 3rd week of radiotherapy. But he has said other than that he feels absolutely fine. Of course everybody is different but fingers crossed you will feel ok too. Good luck with your treatment 

  • Hi I was diagnosed with rectal cancer in March.  I had my radiotherapy at the beginning of October.  The treatment lasted for five days.  I was only in the machine for less than 5 mins each day and didn't feel a thing.  I was a bit tired for a couple of days after but that was all.

    There is no need to be stressed about it.

    Good luck.