I was diagnosed 6 months ago and given 6 -12 months. However if i was prepared to follow the regime of a trial my life expectancy could increase to 30 months or more, However the drugs used are not available on the NHS but i was offered the services of the NHS to administer the drugs if i was prepared to pay for the drugs. The cost of the drugs is mind blowing and unless you are super rich or have a supportive insurer then it is a no go for most people. Fortunately I have a supportive insurer. The treatment is "for life" and has to be administered 2 weeks in every 3 so no holidays from the treatment.

The treatment is causing significant side effects most notably neuropathy, lack of appetite, fatigue and worst of all loss of taste. The treatment though is working as the 2 scans since the diagnosis show no further spread or tumour enlargement. 

Now the dilemma. To stop the treatment when "hopefully" the side effects will disappear or at least diminish. In this case consider alternate holistic remedies. The appeal of this route is to get a life back. Or carry on the treatment and try to live with the side effects.  This will enable me to see some family milestones. If i decide on the latter what can be done to reduce the impact of the side effects. Whilst cancer care team and supportive network have been outstanding nobody has found a solution to the side effects. 

I am new to this forum and would appreciate and suggestions.