Hi Caroleann1, I have pancreatic neuroendocrine cancer, grade 1, stage 4, recently diagnosed, found incidentally during asthma checks, still symptom free, although very widespread throughout my body. I have started Lanreotide injections & have my first check up scan in January '26.
It's a rollercoaster. I went from being told I had 3-6 months life expectancy to being told I had an estimate of 5-10 years in the space of less than 3 months.
Thank you for remembering! I've had the scan & in that limbo-land we all know so well, waiting for results. My appointment with to Consultant is late March, just got to keep hoping for 'no evidence of progression'.
