Hi Caroleann1, I have pancreatic neuroendocrine cancer, grade 1, stage 4, recently diagnosed, found incidentally during asthma checks, still symptom free, although very widespread throughout my body. I have started Lanreotide injections & have my first check up scan in January '26.

It's a rollercoaster. I went from being told I had 3-6 months life expectancy to being told I had an estimate of 5-10 years in the space of less than 3 months. 

Good luck with your journey xx

Hi Caroleann1, I have pancreatic neuroendocrine cancer, grade 1, stage 4, recently diagnosed, found incidentally during asthma checks, still symptom free, although very widespread throughout my body. I have started Lanreotide injections & have my first check up scan in January '26.

It's a rollercoaster. I went from being told I had 3-6 months life expectancy to being told I had an estimate of 5-10 years in the space of less than 3 months. 

Good luck with your journey xx

Just wondering how your scan went.  Diagnosed with NETs across both lungs, inoperable and currently on surveillance- diagnosed in July last year 2025.  

Thank you for remembering! I've had the scan & in that limbo-land we all know so well, waiting for results. My appointment with to Consultant is late March, just got to keep hoping for 'no evidence of progression'.

How're you doing? Xx

Hopefully you’ll get result before end of March!  

I want the result, but I'm scared of getting it, so I'm going through the motions & just waiting to see. The word 'scanxiety' I cam across is perfect!