I have a growth in my oesophagus ,I worry about what I got to come , difficulty eating , drinking and breathing, what treatments will help me
I have a growth in my oesophagus ,I worry about what I got to come , difficulty eating , drinking and breathing, what treatments will help me
I'm so sorry for the worry and stress this is causing MarkJoanne,
I hope this information we have about treatment for oesophageal cancer and how to manage diet problems, including what makes swallowing easier with oesophageal cancer, will help address some of your concerns but our cancer nurses are available on 0808 800 4040 if it would help to talk things through with them. They'll be back in the office from Tuesday onwards, between 9a.m - 5p.m
We do have quite a few members within our community who have been on this journey so now that I've replied, you hopefully won't have to wait too long to hear about their experiences and gain some valuable insight and advice.
We're thinking of you MarkJoanne and sending you all our strength at this rather challenging and uncertain time.
Kind regards,
Steph, Cancer Chat Moderator
Hi Mark Joanne
You are not alone
Please reach out if you feel up to it
My hubby has this too
Hi,
I hope it helps to tell you that it is eight years since my first diagnosis for the cancer you have. I was 67 years old then.
The care, support and treatment I have had since then has been, and still is, fantastic. Chemo, radiotherapy, surgery and immunotherapy. Yes, you will have to bravely face some difficult times, but along with them will come new and positive insights into life, and even great pleasures and satisfaction. Hard to understand how that can be at the moment, but in my experience, that is how it has been and continues to be. I’m sure you will surprise yourself and your loved ones about how brave and cheerful you can be.
I lead a normal active and happy life …I still have an infusion of Herceptin ( immunotherapy) every three weeks, which I’ve been having for over 5 years. No side effects, and always a joy to be in the company of the wonderful oncology staff.
Good luck and best wishes. Your very positive mental attitude will help greatly.
John
Thanks Steph
Hi,
Any specifics I can help with, I will be more than happy to do so. Just ask. No question is unimportant.
The one thing I can say with certainty is that trusting your medics is paramount. They have dealt with innumerable people with your symptoms. Just keep thinking that you’ll be fine. I did and I was and am. Good luck and stay positive
John
It's not knowing how or when am I going to fie
I remember feeling the same way and asking myself the same question. A natural response methinks. Then I begin to think ‘ maybe’ I’ll live?’ And I did… and still wonder if that mindset helped me to do just that.
I reckon that at least 60% of my recovery was and is mental. I want to keep going. And I’m 76 next month. Yes I’m terminal , but aren’t we all?
I live alone ,I was hoping they would take me into hospice ,so I would not have to die alone, they would be able to look after me probably
Don’t give up…keep asking for what you want…you will not have been the only one to feel this way…the medics will help.
Thinking of you and how difficult this is. John
Hello Im not sure about where you are in your treatment if any but you should not have to worry alone
Have you spoken to your medical team about your concerns/ your gp?
They are the ones who would refer you to palliative care team
Or ring cruk nurse line for support
Or Macmillan nurse line are open 8am to 8pm every day
Hope this helps
Sending strength RB