Anyone receiving Denosumab XGEVA

Is anyone here receiving Denosumab XGEVA for metastatic bone cancer

Ive been advised to have this by injection  to slow the progression of the cancer and prevent bone fractures.

Id like to know how well it is tolerated and what side effects you have experienced.

Thanks in advance

Ed

  • Hi Lee good to hear from you and pleased to hear you are still taking those lovely trips abroad.   I did go to Menorca but bloods are always a worry as they always drop considerably but they do go just enough for treatment time.  Off to Norfolk next week snd hoping to go to Florence in October.   I am just careful with masks etc when on planes and buses   How are you Ed hooe all Ok with you too.   Keep stable everyone and enjoy this bit of rain.  

  • Hello Lee 

    What a nice surprise to hear from you. Its good to know that you are getting on with and enjoying your life and overcoming the limitations that cancer inevitably brings to us. I do still work but on my terms as fatigue gets to me and like you the cancer in my spine brings physical problems and pain. However work is a therapy for me and keeps me fairly fit. As you know the importance of exercise having gained those few extra pounds when you couldn’t walk your dogs. The drought has been a disaster for farmers this year the worst I've known, even my small kitchen vegetable garden has suffered badly. You rightly surmise that food will be more expensive. We've got a trip to Brittany in France planned and a trip to London to visit Family and do some sightseeing. I can only travel for short periods sitting down as my back aches too much. Portugal would be my limit flying. The Denosumab seems to be keeping my spine in good shape but my immunotherapy is coming to an end soon as Ive nearly reached the 2 year limit (and £100,000 of NHS funds). I hope that the Oncologist is correct that the Cemiplimab will continue to have an enduring effect on my immune system's ability to fight cancer even when treatment ends. It has been a life changer, giving me a good quality life. Privately it costs £5000 per 3 weeks so out of most peoples pockets short of remortgaging house and everything. Ive caught snippets of your trip to Iceland on this forum and McMillan sounds great place to visit. Enjoy your trip to Praia De Luz, I love Portugal.

    Ed