Anyone receiving Denosumab XGEVA

Is anyone here receiving Denosumab XGEVA for metastatic bone cancer

Ive been advised to have this by injection  to slow the progression of the cancer and prevent bone fractures.

Id like to know how well it is tolerated and what side effects you have experienced.

Thanks in advance

Ed

  • Hi Lee

    Your proactive stance to living with cancer gives you the best life possible. Thanks for the info on the Penny Brohn charity.they seem to offer a lot of support in various ways and I may give a try.. Ive never suffered with stress before. Im not sure if it is the treatments affecting my endocrine system or just not having enough energy to deal with the normal setbacks that life brings. Family squabbles, money, plus friends keeping their distance because they are uncomfortable being around someone with cancer. Whereas living with cancer is the least of my worries. Going for a walk today then Sunday lunch at the pub. Hope you are keeping well.

    Ed

  • Hi Lee and Ed glad to hear you are both pretty active and trying to enjoy life. I also try and keep busy and working part time at the minute as need some normality albeit sometimes very difficult.  It is interesting as I find the same that some friends find it difficult, probably more than I do!   This I found quite upsetting at first but then realised who really cares about our friendships…….  Plenty of friends who do not have to tip toe around me.  

    Enjoy weekend and live life to full.

  • Hi Ed and Cosmopolitan.  I do admire you both for carrying on working.  I miss my job but know I couldn't do it now.  Funny I have not found any friends that keep their distance.  I have told them all I just want to be treated the same and carry on as normal.  I have just read an article on the Macmillan website about toxic positivity.  Really interesting and yes I do agree I hate it when people say 'You got this or stay positive'.  Now just realise they don't really know what to say and maybe say it to make themselves feel better.  I am finding the clinical hypnotherapy once a week with penny brohn is really helping me with stress. I grind my teeth at night and get worked up and am so much better since doing this.  Going to live my life to the full once I get out of bed :) .

    Lee x