Anyone receiving Denosumab XGEVA

Is anyone here receiving Denosumab XGEVA for metastatic bone cancer

Ive been advised to have this by injection  to slow the progression of the cancer and prevent bone fractures.

Id like to know how well it is tolerated and what side effects you have experienced.

Thanks in advance

Ed

  • Hi Ed and Cosmopolitan.  How did your MRI go on Monday Cosmpolitan, its painful lying there for so long isnt it.  When will you get your results, fingers crossed.  Ed have you had a date for your MRI yet?  I know about the pain.  my pain went from being okay to being so sore without pain medication.  I am hoping that this radiotherapy starts working soon.  I am going to pick up the brace and get all the information about wearing it etc on Friday so will let you know if it works.  Never heard of anyone else having a brace.  I am worried about going through the scanner at the airport as it has metal rods up the back.  Be like the bionic woman :)   Hope you are both well. Big hugs.

    Lee x

  • Hi Lee

    Good to hear about how you are getting on. Hoping that the radiotherapy will give you some respite from pain and your back brace will help support your spine so good luck for Friday. No I do not know of anyone who has a back brace for cancer in the spine. Maybe worth a new post asking forum members for their experiences. Im sure that airport security will be able to check you over while wearing your brace. No date yet for MRI scan. Still waiting for radiographers report of CT scan from scan 3 weeks ago. Doctor has looked at scan and thinks there is no change to lesions on spine although the back pain is getting worse. Hope you are out walking your dogs today. 

    Ed

  • Hi Cosmopolitan and Ed,  how are you both doing.  I am not too great at moment.  On antibiotics for respiratory infection was in hospital but now home.  Can't have my treatment today as neutrophils are too low.  We are going to Portugal tomorrow , Tavira Ed so will let you know how we get on.  My research shows it is nice and quiet which is what we like but with things to do and see.  I would like to see the Flamingoes in the saltpans.  Have you had any further news on radiotherapy Ed?  Hope your back is still feeling okay Cosmpolitan.  Hugs to you both.

    Lee x

  • Hi Lee

    I want to wish you a lovely well deserved holiday to Portugal. I guessed you had not been too great recently, cancer is relentless isnt it. I had two of my earlier treatments postponed for similar blood count readons. The doctor has decided against single dose radiotherapy for now. Still waiting for MRI scan appointment 4 weeks now! I think you will enjoy Tavira. There are boats on the river to takeyou out to Ilha deTavira for a couple Euros nice clean long sandy beach cafes etc. Theres lots of churches, a small castle worth the uphill walk for the view. A camera obscura interesting if you have not seen one before. A small museum with stuff from Portugals Islamic past. The saltpans on this side of the river are now disused but worth a look. Theres a market, shaded garden, plenty of choice of restaurants. A day trip to Faro is worthwhile you can get there by bus or local train 40 minutes. Of note are the Cathedral and there are boat trips out to the nature reserve. Hope the warm dry climate is kind to your back. 

    Ed