One year in remission

At my 3-monthly checkups my CA125 results have gone up every time. My latest in February was at 76 The oncologist says that is still stable. Was 9-11 last January, so to me it seems a big jump but he reassures me it is nothing to worry about. I still get niggling pains every now and then. Recently the pains have only been when I go to bed.

I have also put on a lot of weight and feel bloated again. I have another scan at the end of April and see the oncologist again at the beginning of May. I am again, seeing a different oncologist, the second one I saw last year. I wish there was some consistency in seeing doctors.

We did go on our holidays last year and was fine and we enjoyed ourselves. This year we are holidaying in Scotland at the end of May/beginning of June. Really looking forward to going away and hoping for good weather. I hate these dark mornings and earlydark nights but the days  are beginning to stretch out again, thank goodness.

  • Hello EAH, 

    I can completely understand why seeing your CA125 results go up every time would make you worry that it signals something to be concerned about but the most important thing is that the oncologist doesn't seem to worried about it and says that is still stable and nothing to worry about. Don't hesitate to share your worries with your oncologist and mention any niggling pain that has been bothering you, the fact that you have put on a lot of weight and feel bloated and I am sure they will be happy to answer your questions and reassure you. I can imagine the lack of consistency in seeing a different oncologist every time is a bit unsettling; on the other hand you get to have the opinion of different experts rather than just one person so it can also be a positive thing. 

    I hope that all goes well when you have your scan in April and see your oncologist at the beginning of May. I hope that it will all be positive news and that you can then make the most of your holidays in Scotland at the end of May/beginning of June. The weather should certainly be warmer by then and Scotland is so beautiful! Something to really look forward to for you. I think spring is definitely coming... slowly, but surely... 

    Best of luck with your scan - keep us updated if you don't mind on how it all goes. Keeping everything crossed for you!

    Best wishes, 

    Lucie, Cancer Chat Moderator