Is anyone on here been diagnosed with peritoneal cancer ?
Is anyone on here been diagnosed with peritoneal cancer ?
Hi Buffey73 I was diagnosed with peritoneal cancer in May 2024, (reoccurrence-ovarian cancer) Is there anything you would like to ask me? :)
Hello there so you've had this since May last year so how are you coping with it ?what have you had medically to help ? :)
I got diagnosed then had to do 6 rounds of pacitaxel & carboplatin. Then I asked if it was operable, they decided it was and in December 2024 had further debulking surgery, so removal of tumour and nodule on my colon. Now I'm waiting on PARP inhibitors, as I'm homoglobus recombination deficient. I'm okay so far, but debating on PARPS.
Can I ask how old you are ?
You may......55. 1st diagnosis i was 50.
What about you Buffey73 when did you get diagnosed and what have you had?
I'm 73 got told Nov at moment on chemo carbo platinum 6 sessions ,coming 3 Rd end this month .fingers x it works ,doctor hintered on surgery but narrrr to old .if I get 2 or 3 years I'll be happy .if I had been young maybe different. How are you feeling about it all ?
Has spread to the whole of the peritoneum? So just on carboplatin? Ummm I'm angry that they didn't tell me that I was HRD positive, at the beginning. But I'm living life like I want to. Glad it's removed though.
Keep fighting it. Hope chemo is not too hard on you.
Has spread to the whole of the peritoneum? So just on carboplatin? Ummm I'm angry that they didn't tell me that I was HRD positive, at the beginning. But I'm living life like I want to. Glad it's removed though.
Keep fighting it. Hope chemo is not too hard on you.
Don't know yet if its spread will find out at end of 4th session ,yes just on thst st mo .What is HRD ?Nice to hear your living it up .Chemo OK, not had any bad side effects up to now .
it's called Homoglobus recombination deficiency. So a cell loses its ability to repair double strand DNA breaks. They should give you another CT scan see if the chemo is working.
I'll look that up .Yes aftermy 4th session I get one and see my consultant.and again after the 6th one.So how did yours happen what was the cause ?
Ummm good question, I blame stress. No one knows how you get, there's loads of factors but stress is top of the list. There's lots of other things. I'm focusing on being here and not letting cancer get me.
Well that's a great way of thinking about it ,don't let it get you down ,you've a long way to go many years yet .Have you got family?