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Myeloma Warrior

Chezza24
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Hi I have myeloma incurable blood cancer,  diagnosed in 2016 when my appendix caused trouble, this was a blessing in disguise as an early diagnosis ment it hadn't progressed too badly.  I do have CKD stage 3 (Chronic Kidney Disease) 6 collapsed vertebra in my lower spine. After 9 months of Chemo I was given a stem cell transplant.  I was in remission for 4 years, but yhe cancer started creeping back. I have since been on 2 different protocols and will be on treatment indefinitely.  I have also stared treatment to improve my immune system.   I am have a steroid night so no sleep for me as my mind will not shut off.

I would love to hear from other warriors fighting their cancers.

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    Hi Chezza

    I too have Myeloma and was diagnosed in December 2022.

    The consultant was very good and put me on a lot of pills to start with but i found the steroids the best as they took the pain away .

    Then in April i had a stemcell transplant ( that was hard but worth it) and ive been in remission since. But im quite tired a lot of the time and dont sleep too well at night.

    Ive been trying to find out what the cancer will effect next and it seems the kidneys are commonly targetted so i was interested to see that you are having a problem with yours.

    What are the symptoms ? Have they offered you any help? Maybe a transplant if it gets worse ?

    My myeloma started in my lowerrib aand unfortunately by the time thwy found out it has affected my left lung which makes walking uphills very difficult, but we soldier on !

    Looking forward to your reply a d hope you keep fightung it

  • Offline in reply to Bendermender

    Hi Chezza

    Did you receive a reply from me yesterday only it looks like my message didnt reach you

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