Hi Chezza

I too have Myeloma and was diagnosed in December 2022.

The consultant was very good and put me on a lot of pills to start with but i found the steroids the best as they took the pain away .

Then in April i had a stemcell transplant ( that was hard but worth it) and ive been in remission since. But im quite tired a lot of the time and dont sleep too well at night.

Ive been trying to find out what the cancer will effect next and it seems the kidneys are commonly targetted so i was interested to see that you are having a problem with yours.

What are the symptoms ? Have they offered you any help? Maybe a transplant if it gets worse ?

My myeloma started in my lowerrib aand unfortunately by the time thwy found out it has affected my left lung which makes walking uphills very difficult, but we soldier on !

Looking forward to your reply a d hope you keep fightung it

Hi Bendermender,

I don't really have symptoms for my kidneys, I just need to be careful with my water intake. I have had times when I have become dehydrated and this damages the kidneys more, mine is stable at the moment but will never be normal again.  If mine gets worse I will need to go on dialysis. 

I'm glad to have someone with myeloma to talk to as I know our numbers are limited. Where are you based? I live in Cambridgeshire. I have found my hospital so helpful and supportive. Currently I have my antibody treatments every 2 weeks so lots of traveling back and forward for this.  Earlier this year I had a chest infection which wouldn't go away and landed up in hospital for 13 days. My heart decided to join in the fun and wasn't pumping hard enough to remove the build-up of fluids from my lungs.  That was a fun time. But km here still and fighting on. Tell me some of your experiences with Myeloma. 

Hope to speak soon.

Hi Chezza

Did you receive a reply from me yesterday only it looks like my message didnt reach you

No I didn't get a message yesterday

Ill write it again