Myeloma

My husband was diagnosed with the above in the 

middle of June, he has gone down hill quite  fast lost three stone in weight and has very shaky hands? not sure if this is because of the cancer, low blood pressure

feeling dizzy when he gets up. He also has two old fractures at the base of his spine, he knew nothing about these, never had back pain like this, we haveny been able to socialise at all

its hard to stay positive. 

Parents
  • I have Myeloma,  diagnosed in 2016,  9 months of Chemotherapy and then a stem cell transplant. 4 years in remission and the it crept back, currently on treatment that will last indefinitely.  The shaking comes with the medication unfortunately,  I have it all the time.i also have 6 collapsed vertebra in the base of my spine, went through 18 months to 2 years of pain was on pregabaline and oxycodin  tablets for the pain.  I found it really hard as the fatigue you go through makes it impossible to want to socialise or be social.  I found u just wanted to rest at home, I would make plans to meet up with friends and then just feel so exhausted that I couldn't face this. Just going to the hairdressers takes all my strength and then I am exhausted for a couple of days. When you go out you stress because you are trying to act normal  to put others at ease .  Remember your body is being bombarded by chemicals that kill your good cells as well as your bad cells.  I pray for you both. I am here if you want to chat, there will be loads of questions you will have if I am able I will share my experiences with you.

Reply
  • I have Myeloma,  diagnosed in 2016,  9 months of Chemotherapy and then a stem cell transplant. 4 years in remission and the it crept back, currently on treatment that will last indefinitely.  The shaking comes with the medication unfortunately,  I have it all the time.i also have 6 collapsed vertebra in the base of my spine, went through 18 months to 2 years of pain was on pregabaline and oxycodin  tablets for the pain.  I found it really hard as the fatigue you go through makes it impossible to want to socialise or be social.  I found u just wanted to rest at home, I would make plans to meet up with friends and then just feel so exhausted that I couldn't face this. Just going to the hairdressers takes all my strength and then I am exhausted for a couple of days. When you go out you stress because you are trying to act normal  to put others at ease .  Remember your body is being bombarded by chemicals that kill your good cells as well as your bad cells.  I pray for you both. I am here if you want to chat, there will be loads of questions you will have if I am able I will share my experiences with you.

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