Breast cancer

I have recently had a lumpectomy. Now I'm waiting to have a mastectomy. It's a worrying time as cancer has been found to be in my lymph nodes as well. Any advice would be welcomed

Parents
  • Hi SANDYDEE53,

    I hope things went well with the procedure and that you're getting on OK at the moment. This must be difficult and I can of course understand your worries. There will be others here who have experienced something similar, or who are perhaps going through it now too. My reply will boost your post, meaning a few more people should see it, so hopefully you'll get some more replies soon.

    You can also search the forum (using the bar at the top of the page) if you'd like to have a look for other relevant discussions and people to connect with.

    We are always here for support if ever you need it. Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Thank you so much for your reply. I've had the axerily nodes removed. My result appointment was canceled until 11th April. I know its not long to wait but it's so worrying. I try not to Google every thing but I'm finding it hard not to. I do have friends but none of them have gone through this and I feel I can't burden them with my concerns. Same with my children adults now but I don't want to worry them. I will let you know what my results are when I find out. My best wishes to all on the forum and wish you all fit and well xx

  • Hi Sandydee.   I am kind of fortunate to not be on your position ...no lump .. I got calcification in the breast tissue.. they are not harmful I am told when spherical shape ... but I had an area where the cells were unpredictable ..  so yep dcis it's called early "pre _cancer" they call it ...although it is a fast growing strain...so yeah its daunting even when it's contained in the duct... there are lots of lovely people on here and support through macmillan, hospital team, breast nurses, cancer research etc ... there is always someone who will listen and you can air how you feel ...u take care my lovely ....we are all in it together x

Reply
  • Hi Sandydee.   I am kind of fortunate to not be on your position ...no lump .. I got calcification in the breast tissue.. they are not harmful I am told when spherical shape ... but I had an area where the cells were unpredictable ..  so yep dcis it's called early "pre _cancer" they call it ...although it is a fast growing strain...so yeah its daunting even when it's contained in the duct... there are lots of lovely people on here and support through macmillan, hospital team, breast nurses, cancer research etc ... there is always someone who will listen and you can air how you feel ...u take care my lovely ....we are all in it together x

Children
  • Hi Jellybean67a

    I was just wondering… I was diagnosed with DCIS and the biopsy showed medium and high grade cells of a non-invasive kind of breast cancer… by any chance did you have any radiotherapy as part of your treatment? If so … how did that go?

    X

  • Hi there, I had my surgery last week so I am waiting on the results from the tissue I had removed. The consultant did mention radiotherapy so it's possible I will have some.

    Where are you at in your journey, how are you doing...? Be lovely to chat with someone in a similar position to myself.

    Regards Jules

  • Hi Jules

    It would also be lovely for me to chat with someone in a similar position.

    I’ve had a couple of operations for DCIS. The first one was a wide local excision and the second was a cavity shave. I needed the cavity shave because most of the margins were clear, but not quite all of them. In a couple of days I’ll see my consultant and find out for certain if radiotherapy is next. I’ve had a lot of support from my cancer care nurse and Macmillan’s online chat with a nurse, so that I’m more prepared for the radiotherapy option. At the moment this really is my preferred option.

    From what I can make out I had only 5mm of DCIS to be removed and hopefully clear margins too. It’s a noninvasive cancer, but the stereo core biopsy before my first operation, showed a combination of intermediate and high grade DCIS. I think because the cells weren’t low grade, I could be offered a short course of radiotherapy. That would be for 5 days.

    Is any of this similar to your journey?

    Looking forward to hearing from you 

    X

  • Hi there. So mine is 2.5cm high grade DCiS ...I have had a wide local incision...go back June the 4th I think it is for the results on the margins.  Mine looked like a rainbow shape band of stars on my imaging ....I had wire guided surgery... so yeah I can identify with what you are going through...my consultant is fab ...i am really pleased with how he's done the surgery...he basically went behind my nipple .....so the whole area is stitched around...its soluble stitches and my boobs are big enough that they still look pretty similar...lol as much as the cosmetics of that didn't matter ...I am just so thankful ....just see what is next...and yeah I believe at some point I will have a similar radiotherapy...

    I hope you have a good network of people for your journey ....x sounds like your hospital team have been great x

    Jukes

  •  Ah… thanks…

    I hope you have lots of support too

    X

  • I am kinda on my own , do have a very good friend who has been great for listening. Family close by but unfortunately tends to be in their way if anything is given x been through an awful lot this year but I am here and stronger for the journey...we will smash this x 

    Jules

  • Hi again Jules

    It’s good that you have a friend who listens….that’s so important.

    It’s tough when you’re kind of on your own.

    I completely understand because I now live away from lots of my friends and some of my family.

    Although I have been diagnosed after a screening in February, I’m finding it tough too!

    I try to think ahead and image a year from now and how life will be. I believe what ever happens it will be an amazing life….

    It’s so cool that you are stronger for the journey … 

    Together what comes our way … because no one can face this on their own …. 

    We become legends in own life time ….

    My best wishes always

    XXX

  • Yeah I too missed a screening during covid because it was at a hospital too far away...I was in a way so grateful as my cancer was picked up on screening in January...

    It's been tough as I left my husband in Feb before the results ...and literally moved half way across the country...

    I knew I would be trapped in a situation with him for potentially the 6 months of surgery and treatment ....so I went to a different hospital etc 

    That did make a little delay but it was worth the peace of mind to be free and looking at a different future

    Our positivity and strength help other people around us 

    As you say we are our own legends ...and if something we do inspires one other person then we can be proud 

    Have you treated yourself to a gift for points you have gone through in the journey...this was something another inspirational woman suggested to me ...not bought my first one yet but I have an idea what it will be

    I have in mind a bracelet or earrings ...star related because that's what my cancer looked like to me a band of stars in a rainbow shape 

    Regards jules x

  • Ah…Jules ….

    what a beautiful message …. a star ….I hope you do treat yourself to something special soon ….

    with me gifts come in all different ways … sometimes it’s just feeling the breath of the early morning breeze …. I try to find a little something every day ….

    take care on this difficult and also amazing journey

    X

  • What a beautiful message many thanks Jstaves...life certainly takes a different shape and meaning....I am so thankful, one of the lucky ones ...right place -right time ...very fortunate I know there are plenty in a far worse position than I x 

    You stay being your own amazing x and I would love to hear how you get on ....

    Jules x