Anyone out there with the same? Think I’m ready for a buddy… getting frustrated with family and friends thinking I’m “fine”. I’m very much keeping positive but would love to talk to someone in same position. Thanks in advance Kelly
my story begins in 2017 when I was diagnosed straight to secondary. Aggressive tumours in my breast and a met in my liver. I was her2+ and hormone positive. I had chemo first, mastectomy and radiotherapy. I had a complete response to the chemo a. The liver met disappeared. I developed heart failure from 7 cycles of herceptin. I was on letrazole. I remained stable for five years. last summer it came back in my sternum and chest wall. It’s no longer hormone positive only her2+ now. I had 6 cycles of paclitaxol and 12 or 13 cycles of phesgo before scans showed progression. I now have another chest wall tumour. Rib involvement, destruction to my sternum, a hole in one of the vertebrae in my neck. And a met in my liver. Oh and fluid on my lungs which could be cancer or related to the heart failure. I had one off radiotherapy on my neck and sternum for the pain and I have commenced on kadcyla and zoledronic acid. I have ended up admitted to hospital with dehydration a coup,e of times this year. I have been admitted after each cycle of treatment with a high temp/infection. I just feel like I can’t catch a break just now. I would love to speak to you all.
Same my partner thinks I’m fine just because I have had surgery, he doant actually realise it’s stage 4 breast cancer, but I’m sure reality will hit him when I go and see my oncologist on the 4 th sept , then he might stop being so mean to me when he having a bad day. X
I think my partner has had enough of my illness. I am HER2 positive, had chemotherapy, two surgeries, radiotherapy and now on Kadcyla but after six cycles have peripheral neuropathy in my feet which is not subsiding with Gabapentin.
I am worried if the Kadcyla dose is lower or discontinued as what treatment is offered to me then? My partner says I am over reacting and that he needs time to adjust to all the treatments I am receiving. The other evening I came home from visiting a friend and I wanted to tell him I had a lovely time but he was too interested in watching TV, would not pause it and said he has a life too! There has been lots of occasions when he has made me feel stupid. I think he wants to walk away from our relationship once my treatment is over.
Hi Kelly sorry to hear this. have a secondary bone cancer from breast cancer 14 years ago. Please feel free to get in touch as I know how lonely this journey can be.
Hi just wondering how everyone on this thread is doing. I am struggling with lower right back and side pain. Waiting for a CT scan. I fear the cancer has spread to my bones.
Have not told family or friends how I am feeling, I just put on a brave face and carry on.
Hi, I’m so sorry I’m only replying to this now! I’ve sine had more mets in my brain discovered with the sudden onset of seizures which are well controlled now with anti epileptic drugs. I had whole brain radiotherapy which was relatively successful with the majority of the growths shrinking although a couple of tiny growths remain This has greatly reduced my prognosis though I have managed to outlive my predicted deadline. The impact of finding this out has been tough for me and my family, however when I read what you have gone through I am so impressed that you are still battling through such a difficult time. You are one amazing warrior! How are you now?
Hi Sandradee, hoping your pain is under control. I have to take Oramorph most days now on top of the high dose of MST and had scans to see if there was something going on. They discovered a lot of the pain was coming from Osteoporosis and the cancerous growths in my spine were still stable. I’ve gone back to using my back brace when I feel I need it. Thinking of you and hoping you have good news but if not I’m happy to chat
