Her 2 metastatic lung cancer

Hi , I have been diagnosed with Her 2 metastatic lung cancer. This cancer has not responded to platinum based chemotherapy drugs or immunotherapy and although the tumour was removed by surgery, the cancer has now spread to two sites in my spine and is classed as stage 4. There is no designated treatment in the UK for HER 2 lung cancer . In the USA and EU the condition is treated with a chemotherapy drug called Enhertu but this is not as yet licenced for use by the NHS. I am exploring whether this drug is available privately in the UK although the cost is likely to be prohibitive.

Does anyone have experience of Her 2 lung cancer or been able to access Enhertu?  

 

 

Parents
  • Many thanks Steph. I will contact HopeSprings. An option I may have is to be referred to The Determine Trial run by Cancer Research and two hospitals for rare cancers. I cant find any discussion about this trial in the forum using the search tool. Are you aware of any? Sue 

  • Hello Treefield

    I've had a look through the forum and I can't see any members who have mentioned the DETERMINE trial but we do have some information on our website here that may be of help. 

    If it would help to talk things through with one of our nurses, do give them a call. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Hi Treefield I hope you don’t mind but I was directed to your chat by Jolamine, and I was wondering if there was anything I could help you with as I’m on the drug Enhertu albeit I just started. Please feel free to ask any questions you like and I will endeavour to either answer or at least ask my oncologist for you. Kindest regards Hopesprings. X 

Reply
  • Hi Treefield I hope you don’t mind but I was directed to your chat by Jolamine, and I was wondering if there was anything I could help you with as I’m on the drug Enhertu albeit I just started. Please feel free to ask any questions you like and I will endeavour to either answer or at least ask my oncologist for you. Kindest regards Hopesprings. X 

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