Hi Staypositive,

I can understand how devastating this must feel, just as you finished your radiotherapy. Unfortunately, this is the rollercoaster that is cancer. Let's wait and see what your CT on Tuesday brings. There are many people on this site, who have had similar diagnoses, yet continue to overturn the course of their prognoses. Do you know whether or not chemo, or immunotherapy are treatment options?

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Thank you for your support and reply.  The consultant mentioned the following treatment but obviously until the scan results I can’t be sure.

Abemaciclib

Letrozole ( currently started in November on Tamoxifen)

Ovary suppression

Bone strengthening injections

He did say that there were different options available along the journey. Just waiting for Tuesday.

Hi,

It sounds as if there are still plenty of treatments for this, so don't give up hope yet. I shall be thinking of you on Tuesday.

Kind regards,

Jolamine xx

Hi Staypositive,

I have been thinking of you today and I hope that your CT went well. Did they say when you would get the results?

Kind regards,

Jolamine xx

Thank you Jolamine for checking in on me - very appreciated.

My initial CT scan was postponed but have now had Pet/CT and CT scans.  Pain in my back has definitely increased since being told about mets to spine - need results to know full picture.  Consultation appointment next Thursday and starting on ovary suppression and bone strengthening then too.  1 further week to wait.  Assume if spine particularly bad on scans they will ring?  

Thank you again

Hi Staypositive,

I am sorry to hear that your initial CT was postponed, but glad to hear that you have now had Pet & CT scans. They are usually fairly accurate with the length of time that they say it takes to get your results, and it tends to stay the same, irrespective of what the results are. I shall be thinking of you on Thursday week and hope that the cancer hasn't spread far.

Kind regards,

Jolamine xx

Hi Staypositive,

I am sorry to hear that your initial CT was postponed, but glad to hear that you have now had Pet & CT scans. They are usually fairly accurate with the length of time that they say it takes to get your results, and it tends to stay the same, irrespective of what the results are. I shall be thinking of you on Thursday week and hope that the cancer hasn't spread far.

Kind regards,

Jolamine xx