Hi Staypositive,

I can understand how devastating this must feel, just as you finished your radiotherapy. Unfortunately, this is the rollercoaster that is cancer. Let's wait and see what your CT on Tuesday brings. There are many people on this site, who have had similar diagnoses, yet continue to overturn the course of their prognoses. Do you know whether or not chemo, or immunotherapy are treatment options?

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Thank you for your support and reply.  The consultant mentioned the following treatment but obviously until the scan results I can’t be sure.

Abemaciclib

Letrozole ( currently started in November on Tamoxifen)

Ovary suppression

Bone strengthening injections

He did say that there were different options available along the journey. Just waiting for Tuesday.

Hi,

It sounds as if there are still plenty of treatments for this, so don't give up hope yet. I shall be thinking of you on Tuesday.

Kind regards,

Jolamine xx

Hey Staypositive 

im leanne and was diagnosed secondary breast cancer back in November with mets to spine rib and pelvis! My primary diagnosis was back in April!!  

it’s defo a shock for u and I know exactly how u feel as I was going through chemo when I discovered I had this! Very bitter sweet to get to 7 out of 7 chemo and told this!!!

u don’t have limited time none of us know how much time but you can’t give up your fight!!! We are strong women  and are bosses of our journey!! Keep the head up and keep busy!! Obviously it’s difficult and there are days that it gets on too but the minute the head is down then it’s won!! It’s not easy but we can’t let this ugly disease take over our life!! 

always hear if you need a chat xx

Hi Staypositive,

I have been thinking of you today and I hope that your CT went well. Did they say when you would get the results?

Kind regards,

Jolamine xx

Thank you Leanne for your encouragement/ positivity.  My initial scan was rearranged so the not knowing is currently not helping and my back has definitely got worse since being told 2 weeks ago.  I assume if my spine scan is particularly bad they will telephone.  Have a consultation next Wednesday.

Has starting medication for your mets helped?

Good luck with your fight against cancer - you deserve to keep winning.

Thank you Jolamine for checking in on me - very appreciated.

My initial CT scan was postponed but have now had Pet/CT and CT scans.  Pain in my back has definitely increased since being told about mets to spine - need results to know full picture.  Consultation appointment next Thursday and starting on ovary suppression and bone strengthening then too.  1 further week to wait.  Assume if spine particularly bad on scans they will ring?  

Thank you again

Hi Staypositive,

I am sorry to hear that your initial CT was postponed, but glad to hear that you have now had Pet & CT scans. They are usually fairly accurate with the length of time that they say it takes to get your results, and it tends to stay the same, irrespective of what the results are. I shall be thinking of you on Thursday week and hope that the cancer hasn't spread far.

Kind regards,

Jolamine xx

Hello sorry for late reply! Didn’t notice the reply

So after I was told about the met to the rib I constantly thought that the pain was intesifying but when I was busy I did not feel the pain only when not doing anything which I now know was psychosomatic pain or probably just anxiety!! 

the not knowing is awful and waiting is just not needed!! 

im on phesgo jag but not had this since beginning of December as my heart function has reduced due to this medication lol so Got a 6 week break and due back on 14th feb (how romantic); my treatment is phesgo and tamoxifen! I’m also taking a lot of supplements and back at gym so keeping busy is helping! I’m very fortunate I don’t have any new back pain! The back pain I have has been the same for years (basically since my epidural) - I sometimes wish they didn’t find mine so quick and that I at least had some time to be “cancer free” or believe I was but I didn’t and everything happens for a reason 

keep positive, keep busy, keep being you and never give up!! Like I say if you need to chat always here xx