Hi JLD,

I had a right side mastectomy on Tuesday, so you and I are at similar stages. I’m really pleased your sentinel node was clear- I wasn’t given any information about mine, so will find out at my next appointment. 

I have dissolvable stitches covered with a thin clear dressing. I had a drain but it was removed today, which has left me feeling more comfortable. I’m not sleeping well, but I’m sure that will improve in time.

I hope you are feeling ok today. I’m feeling pretty good, but very tired now as I went out for a walk.

Take care xx

Hi JLD,

I had a right side mastectomy on Tuesday, so you and I are at similar stages. I’m really pleased your sentinel node was clear- I wasn’t given any information about mine, so will find out at my next appointment. 

I have dissolvable stitches covered with a thin clear dressing. I had a drain but it was removed today, which has left me feeling more comfortable. I’m not sleeping well, but I’m sure that will improve in time.

I hope you are feeling ok today. I’m feeling pretty good, but very tired now as I went out for a walk.

Take care xx

Hi there 

how are you doing I am two weeks post mastectomy tomorrow and up and down to be honest. I have a seroma along the glued line that is sore and a bit uncomfortable it starts off ok in the morning but gets bigger by the evening. I hope you are feeling good now. My follow up appointment I’d Friday and just waiting for the HERS2 results to then give me a plan of action.

All I know  at the moment is that I will be taking meds for 5/10 years but not a treatment plan.sleeping is again up and down I don’t normally sleep on my back so it’s not naturally comfortable.

Are you taking pain relief I’m on paracetamol and ibuprofen.

not sure if the seroma will need draining as I had no drains .

take care xx  JLD 

Jld 

glad your operstion went well , it’s always a worry waiting on results after operation hopefully everything will be ok and you can move on with no further treatment and go straight on to the tablets good luck let us no how you get on love Lara xx 

Gooner 

how you doing is it this week you get results from operstion ? Hope all is well lovely love Lara xx 

Hi Lara

Yes this Friday it’s such a waiting game. I thought when they said the lymph nodes were clear that was the end of the worrying. But now the results of the HERS 2 could show that it’s a recurring cancer so that’s been a huge shock to me . I have tried to stay away from mr Google as I have a tendency to be a catastrophiser. So my knowledge of what could or may happen is head in the sand .Facts eg results are the way I’m dealing with things, day by day results as opposed to the maybes.

I hope all is going well for you my knowledge at the moment of my cancer is that it’s invasive lobular breast cancer hormone receptive.

sending love and good vibes .To you .

Yes jld 

it’s a rollercoaster for sure that happened to me also all lymph nodes looked clear then after my operation my results show that there was a teeny trace in one node my world fell apart I was assured that they were clear . But one thing for sure after all your treatment things soon turn back to normal and fast it’s soon forgotten my diagnosis was July 22 I’m fully back to crazy life and have been for a year try not to google. , will you be takin any medication afterwards? 

love Lara xx 

Hi JLD,

I’m not bad thank you, although just as I thought my sleep we getting better, I hardly slept at all last night! I just couldn’t get comfortable. I’m also more sore by the end of the day. I have a lump under my arm which I assume is a seroma, and it’s a bit uncomfortable by the evening. Mostly I’ve been taking paracetamol or ibuprofen when I need it, with  a codeine at bedtime on the days I’ve been particularly sore. 

I just heard today that I have my follow up appointment on Monday morning. Like you, all I know is that I’ll have to take hormone blockers- I don’t yet know whether I’m having chemo or not, so I’m a little anxious about it. 

I’ve started back at work (online only) a bit this week and am finding it tiring, but I’m self employed and can’t really afford not to. 

It sounds as though we are having similar experiences at the moment!

take care xx

Hi Lara,

I’m not bad thank you. I get my results on Monday morning. Not sure what I expect really, but will obviously deal with whatever they decide I need next xx

Gooner 

glad you are ok , it’s surprising how much it takes out of you and it’s the dark nights make us more tired xx 

Hi GoonerGirl,

I'm sorry to hear that sleep is still an issue, although it sounds as if you've managed a few good nights too. You'll be glad to have your appointment on Monday, to find out what lies ahead in the way of treatment - here's hoping that it doesn't include chemo. Your seroma sounds as if it is uncomfortable. It should settle down with time. If it is really troublesome, they could aspirate it on Monday.

You are doing really well to be back to work already. I understand the problems of being self-employed, as I faced that problem too. Just be careful not to overdo it, as your body still needs the additional rest.

Kind regards,

Jolamine xx

Hi JLD,

I hope that you are recuperating well. You are quite right to steer clear of Google and there really is no point in worrying about "what ifs". No amount of worry will change the outcome, so continue as you are, dealing with things day by day. It's not long till Friday and I sincerely hope that all of your results will be favourable.

Kind regards,

Jolamine xx