Problems with cancer treatment on the NHS. Has anyone else had similar issues?

Has anyone else become stressed, anxious, frustrated by aspects of their NHS cancer treatment?

My issues may seem trivial but I've experienced delays, information provided is not always accurate never mind complete, lack of co-ordination between hospitals (have had to deal with 3) and my GP, difficulties in getting prescriptions, hospital transport, lack of follow up on tests 'they' say they have ordered/or tests planned, failure to write down my answers to questions posed (for example) chemo nurses or doctors, phone appointments not stuck to, out of date information in letters, delays in chemo treatment- sometimes as long as I'd expect to wait in Casualty, waits for transport home - up to 4 hours.

I don't know how to manage my reaction when things don't go smoothly, or how to lower my expectations, or even how to get access to whoever I need to speak to or email. Maybe all minor issues but cumulatively they raise my stress levels. I can't afford to pay for private sector treatment and would have a bad conscience about that. PALS, macmillans - not helped. 

I did look through categories already in existence and went back till I came to threads where the last response was 4 months ago - so sorry if this duplicates something I missed.

  • Welcome to Cancer Chat, BarbaraJoy.

    I'm sorry to hear about the challenges you've been facing during your NHS cancer treatment. 

    Your feelings are valid, and it's essential to address these issues for better patient experiences. It might be a good idea to reach out to your GP or Consultant to discuss your concerns with them to improve communication and coordination. You also might want to keep a record of the issues you encounter for future reference.

    Hopefully others who have faced a similar challenge will be here shortly to chat with you and offer more advice. 

    Please remember, you deserve the best care and support during this challenging time. Stay strong and seek the assistance you need to navigate these difficulties effectively.

    With best wishes,

    Renata, Cancer Chat Moderator