Hi Cally,

Thank you for your quick response.. that sounds very reassuring, hopefully it will be the same for me..

Wishing you all the best too.

Lizzy

Hi Lizzy, I'm on Phesgo too. I'm halfway through the 18 injections. I've had chemo and lumpectomy with lymph node clearance. My hair is growing back since finishing chemo in January. It's coming along slowly but I'm enjoying not having to style it and get it cut every few weeks! My nails are also growing at a rate of knots, which is good because EC and Docetaxel really messed them up. Yes, it does seem strange to still be having active treatment after being told we're cancer-free - I'm having five days' radio next week as well as the Phesgo, and I'll be starting bisphosphonates in due course. I just have to trust that my oncologists know what they're doing and only prescribe what will give us the best chance. Love and prayers, Amy x

Hi Amy,

It's good to hear you are doing so well and reassuring for me, so thank you. I had Docetaxel too it destroys everything I think, I lost eyelashes, eyebrows etc.....

My nails and hair are just beginning to recover slowly (albeit grey!) It makes such a difference to have some hair, feel a bit more normal.  Hence why I'm so worried I might lose it again.. like you it is quite refreshing not having to worry about your hair, it's very simple having a crop!

I had a call yesterday and am starting the Phesgo on Weds so wish me luck.. 

Best of luck to you too with the radiotherapy and wishing you well, it's such a hard journey, and like you say we have to trust the experts.. By the way I've never heard of bisphosphonates?

Take care, 

Lizzy..

Hi Lizzy, thanks for the kind wishes. I've coped really well with chemo and surgery, so hoping for more of the same with radiotherapy. My eyebrows don't seem to be growing back - I still only have a few hairs that didn't fall out. Hoping they will come back in time! Bisphosphonates are prescribed to strengthen the bones. In my case (early, locally advanced BC, post-menopausal), it's to prevent osteoporosis and reduce the likelihood of cancer coming back in the bones. I was also HER2 positive and started Phesgo with the last four chemo cycles (I had 3x EC and 4x Docetaxel). Did you not have it with your chemo? Best wishes, Amy x

Not heard of phesgo yet from my team can I ask your ages . I wonder if only younger women are offered this?

Hi I'm 51 so not just younger women I believe. It's particularly for HER-2 positive cancer.   Hope that helps.

Best Wishes Cally

Hi Amy,

Had the first PHESGO injection this morning, seems to be fine, left a nasty red mark and is a bit sore..

I forgot to ask, maybe you know, are you meant to leave the area covered (plaster)

And no I've never been told about bisphosphonates , so thank you for that, I have an appointment with my consultant in a couple of weeks so will ask her about it. 

Good luck with your radiotherapy

Take care

Lizzy