Hi Cally

That's a great news. I was diagnosed straight out of the gate with stage 4 in lungs and liver and been on phesgo targeted therapy since I started my treatment in May 2021 and my scan in January showed nothing in lungs and nothing in liver. I had my recent scan last week so just waiting for the results and hoping its best as it can be. Hopefully it will carry on for all of us ladies affected by this horrible thing   for decades and much more to come.

Sending virtual hugs 

Kaz

Dear Kaz,

thet has made me so happy to hear this! It's so important to post our results on here to help others.  Good luck with your results, my oncologist said although this is a relatively new treatment in the uk, she does know of women who have been on it and in remission for 20 plus years.  Let's just keep the faith and I'm sure in the near future something even better might come along.  Sending you a big hug back!

Cally x

Thank you! I also believe that  our stories and experiences will help mentally women that are just starting their journey and hopefully we can bring something positive for all those that need it. We can beat this!  

Kaz xx

We can ♥️♥️♥️

Hi ladies,

I'm very grateful for your posts. I was diagnosed last year with Her 2 positive stage 3 (10cm tumour).. 

I've had chemotherapy, mastectomy, sentinel lymph node dissection with good results. I am due to start radiotherapy in a few weeks, to prevent reaccurance, I spoke to my consultant on Fri who has also suggested I have phesgo injections every 3 weeks for 8-9 months. Felt very apprehensive about this, seems a lot when there's no sign of cancer any more, but glad to hear all your positives about being on the drug. One of my concerns is my hair is growing back, will this make it fall out again?

Lizzy 

Hi Lizzy,

Phesgo does not usually make your hair fall out as far as I'm aware, mine certainly hasnt and started growing back as soon as chemo finished.  I've literally had no side effects at all from Phesgo to complain about and feel better than ever. I hope this helps.  It's nothing like chemo just an injection every 3 weeks as you'll know.. Wishing you lots of success with your treatment.

Best Wishes Cally 

Hi Lizzy,

Phesgo does not usually make your hair fall out as far as I'm aware, mine certainly hasnt and started growing back as soon as chemo finished.  I've literally had no side effects at all from Phesgo to complain about and feel better than ever. I hope this helps.  It's nothing like chemo just an injection every 3 weeks as you'll know.. Wishing you lots of success with your treatment.

Best Wishes Cally 

Hi Cally,

Thank you for your quick response.. that sounds very reassuring, hopefully it will be the same for me..

Wishing you all the best too.

Lizzy

Hi Lizzy, I'm on Phesgo too. I'm halfway through the 18 injections. I've had chemo and lumpectomy with lymph node clearance. My hair is growing back since finishing chemo in January. It's coming along slowly but I'm enjoying not having to style it and get it cut every few weeks! My nails are also growing at a rate of knots, which is good because EC and Docetaxel really messed them up. Yes, it does seem strange to still be having active treatment after being told we're cancer-free - I'm having five days' radio next week as well as the Phesgo, and I'll be starting bisphosphonates in due course. I just have to trust that my oncologists know what they're doing and only prescribe what will give us the best chance. Love and prayers, Amy x

Hi Amy,

It's good to hear you are doing so well and reassuring for me, so thank you. I had Docetaxel too it destroys everything I think, I lost eyelashes, eyebrows etc.....

My nails and hair are just beginning to recover slowly (albeit grey!) It makes such a difference to have some hair, feel a bit more normal.  Hence why I'm so worried I might lose it again.. like you it is quite refreshing not having to worry about your hair, it's very simple having a crop!

I had a call yesterday and am starting the Phesgo on Weds so wish me luck.. 

Best of luck to you too with the radiotherapy and wishing you well, it's such a hard journey, and like you say we have to trust the experts.. By the way I've never heard of bisphosphonates?

Take care, 

Lizzy..

Hi Lizzy, thanks for the kind wishes. I've coped really well with chemo and surgery, so hoping for more of the same with radiotherapy. My eyebrows don't seem to be growing back - I still only have a few hairs that didn't fall out. Hoping they will come back in time! Bisphosphonates are prescribed to strengthen the bones. In my case (early, locally advanced BC, post-menopausal), it's to prevent osteoporosis and reduce the likelihood of cancer coming back in the bones. I was also HER2 positive and started Phesgo with the last four chemo cycles (I had 3x EC and 4x Docetaxel). Did you not have it with your chemo? Best wishes, Amy x

Not heard of phesgo yet from my team can I ask your ages . I wonder if only younger women are offered this?

Hi I'm 51 so not just younger women I believe. It's particularly for HER-2 positive cancer.   Hope that helps.

Best Wishes Cally

Hi Amy,

Had the first PHESGO injection this morning, seems to be fine, left a nasty red mark and is a bit sore..

I forgot to ask, maybe you know, are you meant to leave the area covered (plaster)

And no I've never been told about bisphosphonates , so thank you for that, I have an appointment with my consultant in a couple of weeks so will ask her about it. 

Good luck with your radiotherapy

Take care

Lizzy