Advice gratefully sought

My loving partner was diagnosed with bowel cancer three years ago. It continues to be a rollercoaster ride and he is living with a stage 4 diagnosis, scan to scan. The cancer spread to his liver and lung. We have two young children and until recently managed to still live a happy and busy life, whilst navigating chemo, scans and operations. 
Over the past year, he has become a Jeckall and Hyde character. Making plans, being involved in family life, Going out on dates one minute. Then saying he doesn't want to be with me, doesn't like, fancy or love me and telling me I need to find somewhere else to live. He in turn has become paranoid and jealous, accusing me of cheating. I am either with children or at home, I am lucky to be able to work from home to maximise time at home. We have just come back from a lovely holiday and again today he turned. Saying I am the worst decision he ever made etc...I questioned if he was seeing someone else and he really flew off the handle. I don't think he is but I questioned why he wants to go off and spend time on his own. (We have a house in the south and he has started to spend the odd couple of days there. I thought to recuperate). I don't think he would do it to our family but I am questioning everything now. 

I am at my wits end and I just feel heartbroken. I thought we were happy, I love him and I love our family. If we didn't have children I might think slightly differently but I love him and I think he's taking it out on me. He does have friends but doesn't talk to them, he won't try counselling. I called a support line and they basically told me I am being coercively controlled. He's stopped working and his works has shrunk considerably. I have thrown myself into school life and have a fantastic group of friends who are very supportive. I don't know what to do anymore but I would never forgive myself if I didn't allow my children precious months / years with him. He is a good father and I think this is one of the things that has kept him going. The saddest thing is he's my best friend and I only want to talk to him and work it out. I just don't know what to do for the best. It breaks my heart what he's going through but I can see these behaviours are unacceptable and I do not deserve it. I have considered talking to one of his friends but this might land badly when he eventually finds out. He's a typlcal old skool and private man.  I just want my best friend back and I want our family together for as long as possible. 

  • Josie,

    There is nothing I can say that will make things better for you, but I just wanted to let you know that you have come to the right place to vent your feelings.  It sounds like he desperately needs professional help.  There must be someone you can speak to in his hospital team. Perhaps you could quietly mention to the oncologist or whoever that you are worried about his mental health as well as his physical health and see if they can persuade him to talk to someone.  His behaviour could all stem from being fearful about his health and his future,  I know from my own experience that having cancer can dwell on the soundest mind.  I feel for you and what you are going through, and really hope things improve. 
     

    Christine x

     

  •  

    HI Josie,

    A very warm welcome to the forum that nobody really wants to join.

    I am so sorry to hear of your situation and totally agree with Sheltie_ Lady, in that you have come to the right place. Many people with a cancer diagnosis find it especially hard to deal with, even more so, when there is a young family involved. There can be a great fear of death and sometimes the need to break away from the family seems the locical decisoin. I am not saying that this is the right one, but the mind isn't right when facing a terminal prognosis. 

    It does sound as if your partner needs to discuss his feelings with an impartial professional. Can you contact his care team, to highlight the problems that you are having and stress how he has changed from the loving partner that he was? I am sorry to be so blunt, but I have been with a number of family members, who were suffering with end stage cancer. The mind can play some unfortunate tricks and this can sometimes signal further spread to the brain. Unless your partner has mentioned how he feels to his care team and I doubt that he has, they will be unaware of these changes. 

    It is possible that he knows how unfair he is being to you, but doesn't know where to turn to. It is often our nearest and dearest who get the brunt of things in such situations. Try discussing these changes with his care team first. If this doesn't help, perhaps seeing a counsellor or psychiatrist might help.

    He may well be going to your house in the south, because he knows in himself, just how unfair he is being with you. He probably feels that he is less offensive, when he is spending time on his own and you are not there to take all that he throws at you.

    I truly feel for you and hope that you can find a way to defuse the current situation. It is hard enough to deal with a terminal prognosis, without having all of this additional stress.

    Please keep in touch and let us know how you get on.

    I am always here if you want to talk.

    Kind regards,

    Jolamine xx

     

  • Really sorry to hear what you and your family are going through, Josie. I can only speak from the point of view of someone who's currently struggling with mood swings, aggression, depression, etc. i've got a grade 3 brain tumour and epilesy so i'm always trying to suss out whats causing the problems. Fortunatly, many of my personality changes were due to side effects from my epilepsy meds. But steroids (dexamethasone) also caused me to have mood swings, paranoia, etc. But like the other users have said, just the stress and frustration of knowing what hes dealing with, maybe causing some of the problems. I know I was being particully cruel to those who were closest to me. I was just snappy, tired, then manic the next minute. Really horrible.

    I really hope things get better for you, Josie.

    Aaron.