How many more times will I get cancer????

Hi everyone,

Let me give a brief history so far.

Year 2000 Inflammatory breast cancer. Given 8 rounds of chemo. Dissolved tumour. Then had lymph glands removed. All clear.

Forward to 220. Diagnosed with Endometrial cancer. Radical hysterectomy followed by brancytherapy. A few months later started bleeding but everyone told me it was just where I was healing from the brancytherapy.

Year 2021 in the Dec. Told I had a tumour on my vaginal wall where my wee pipe is. That was where the bleeding was coming from. Could not operate.

Year 2022 Two rounds of Chemo and five weeks radiotherapy followed by brancytherapy. I then had an Mri scan and a c.t scan which I was told on Friday showed up a small mass at the top of my vagina this time. Luckily a surgeon was in the unit at the same time and he and My doctor both examined me. Conclusion is they are optimistic and it is operable. Will have a meeting on Wednesday to discuss my case and hopefully will be into sign papers soon and given a date for my operation. I just feel numb now. No emotion at all just fed up and wondering when this merrygoround will end. Am I just unlucky to have cancer again for the 4th time??????

 

  • Hi, I can't answer your question I'm afraid, but I was wondering if you'd have a genetics test to see if you are predisposed (or whatever the right word is) to cancer? Four times, I really feel for you and wanted to send you a virtual hug. Mickey xx ️

  • Several people in my family had 3 or 4 different primary cancers several years apart. Some cases genetic, but not all. 

    So sorry you are having to go through this... Sending you a virtual hug and good wishes that the latest surgery goes well and hopefully sees off cancer for you for good. Xx

  • Yes I believe they have done and nothing has come back. Thank you for the virtual hug I really need it at the moment as feel very alone.xx

  • Thank you for your best wishes. I think I have just been unlucky but no choice but to go onwards and hopefully upwards.xx

  • Hi you can keep going onwards and upwards and this cancer is the last. All the best for the future. 

    Im completely different to you was diagnosed feb 2016 prostate cancer gone to lymph node's, pelvis, spine, ribs and a lung classed as uncurable two years later palative care, no operation just permanent treatment cancer shrinking cancer increase changed treatment again and again im keeping positive mostly depending on side effects, im also a carer for my wife she has dementia and other problems. 

    People like us always struggle but we get inner strength to keep going nomater what. 

    You have that strength to keep fighting. 

    Billy 

  • Ellie Anne

    Hi Ellie Anne, just read your post and I'm so sorry your going  through so much,health issues do seem to be one after the other for some.

    My first thought was I can totally understand your feelings,of feeling numb,after getting diognosed with cancer four times,that's really tough, and hard to handle.

    But you seem like an Incredibly remarkable person, I wish you every best wishes for getting help and treatments,that can hopefuly get you back to feeling well again soon. Lots of love and a big  virtual hug   is being sent to you from me. I have had what seems to be one health issue after another myself ,but not as bad as yours ,I was diognosed with high grade dysplasia ( pre cancerous cells in my bowel, on a flat sessile polyp  ,so had to have half my bowel taken away,and my appendix, and a small part of my intestine on the right side.  I then git a hernia, bowel came through my stomach wall,and so back in I went ,to have another operation to repair it ,with mesh. Then I fall outside and break both my wrists,so was in two plaster casts for weeks. Then I am admitted to hospital, with bad stomach pains,temperature, was diognosed with Gall stones. Was soposed to have them out,but when they realised i had  mesh inside me,I was told they couldn't operate,I needed to go back on the waiting list to see a specialist surgeon. I waited nearly a year,and in that tine I had no pain again, nothing,so decided I would not go through with another operation. Then in May 2020 I was diognosed with breast cancer and it had spread to my lympth nodes. Again all on my right side,so had lumpectomy, and all my lymph nodes.were removed from under my right arm.  Then 8 rounds of chemotherapy, and 15 sessions of Radiotherapy.  Then in December 2021,I found another lump insame breast,had to wait six weeks to be seen, but luckily it was just a small cyst,so nothing needed doing.

    Now I've been diognosed with vin 3 pre cancerouscells of my vulva,  ,around 7 mths  ago now . I've  ,had a biobsy ,and just been moniterd by a gynecologist, he didn't want to treat it just moniter it 

    My gp sent me to a dermatologist, who was worried about an arra on the opposite side to where the vin 3  was,I was prescribed a cream imiquimod cream,and on the prescription it said to use it three times a day, which I did. By day four I was in agony, it caused pit holes and twelve big ulcers. So back I went to see another dermatologist, who was shocked and saud oh my goodness,it's been prescribed wrong, no wonder your in such agony,it should of said use three times a week,not three times a day. So I had to wait for it to heal,and then  i have  had another biobsy on the 9th August 2022 just gone to check for pre cancerouscells etc . There is a backlog,so was told results could be up to 6/ 8 weeks before they get them back. 

    So although my problems  are not half as bad as yours,I do understand somewhat of how your feeling.

    Alwsys popping on here from time to time,so if you need a friend,or just a chat I'm here,you can always send me a friend request on here if you want. And I will understand if you'd rather not too xxx

  • Hi Jassoscared,

    you have certainly had your fair share of problems too. Half the problem is that everything takes so much time. You go for tests and then it's the waiting around for results a,nd then their meetings to discuss what they are going to do treatment wise. Then you wait to be called in to sign paper's and then another date for your operation.

    I hope you get your results soon and it's good news. Take care for now. xx

  • Hi Billygoat,

    Thank you for your good vibes. So sorry to hear your diagnosis but treatments are improving all the time arent they. As we say the only way is up and today feeling more positive. You are so right about inner strength and you sound like a very strong person with tremendous courage, especially with looking after your wife. I hope you continue the fight. Take care.xx

  • Hi i had to promise my wife to be that i would look after her when she got old as she's nearly 14 years older than me and she was worried about the age gap, i agreed and we got married over 50 years ago and still keep each other going despite problems with us both. 

    Try to keep positive and sure nomater what really helps us keep going. 

    Billy 

  • Oh my goodness you are having a rough time, poor you.  Im hoping and praying for you that this is the final time. Im in recovery from breast cancer and dreading secondary so I can imagine how you are feeling.

    I hope all goes well and sending you best wishes

    Silver