Struggling

Hi

I was diagnosed with TNBC a few weeks ago. I'm having chemotherapy first and then surgery. I started my chemo last week, my second session is tomorrow. The first session of treatment was fine. No side effects or hair loss yet but I know its very early days. I have good days and bad days about the whole situation. I'm absolutely worried sick but I try to put on a brave face, keep busy and try to put it to the back of my mind but obviously it never goes away. At the moment I'm really struggling. I feel very tearful and anxious. I have a long way to go but I just want the treatment to do it's job so I can get rid of this vile disease. I know no one can tell me what's going to happen but I'm so scared. 
 

x

Parents
  • Hi I am on cycle 6 of 8 dose dense chemo so I do a treatment every two weeks. I am also doing chemo before surgery but I am ER+.

    It is ok to be scared. I am scared all of the time. It is normal it is the brain trying to protect you, it doesn't know it is making things worse!

    I am cold capping, although I was told it wouldn't work on my treatment plan. But here I am at cycle 6 with most of my hair, bar a thinning patch up top and a little bald patch by my ear. It is different for everyone but I found the shedding really hard and scary, but for me it slowed at cycle 4 and 5 if that helps. 

    No one does know what will happen, but reach out to people and tell them how you feel as they may be able to help. My nurse sorted some medication for my anxiety and I go to a cancer charity for mindfulness classes. A very wise lady I know told me to build a toolkit for the days I don't feel happy; listening to music, playing games, doing puzzles or just going down to the bottle bank to do the glass recycling helps me. I love hearing the bottles and jars SMASH, so satisfying. She also said it is ok not to be ok which I repeat to myself when I feel low. 

    I hope this helps, it might not but if not then please remember that you aren't alone and stay away from dr Google. I really struggle with that one! 

Reply
  • Hi I am on cycle 6 of 8 dose dense chemo so I do a treatment every two weeks. I am also doing chemo before surgery but I am ER+.

    It is ok to be scared. I am scared all of the time. It is normal it is the brain trying to protect you, it doesn't know it is making things worse!

    I am cold capping, although I was told it wouldn't work on my treatment plan. But here I am at cycle 6 with most of my hair, bar a thinning patch up top and a little bald patch by my ear. It is different for everyone but I found the shedding really hard and scary, but for me it slowed at cycle 4 and 5 if that helps. 

    No one does know what will happen, but reach out to people and tell them how you feel as they may be able to help. My nurse sorted some medication for my anxiety and I go to a cancer charity for mindfulness classes. A very wise lady I know told me to build a toolkit for the days I don't feel happy; listening to music, playing games, doing puzzles or just going down to the bottle bank to do the glass recycling helps me. I love hearing the bottles and jars SMASH, so satisfying. She also said it is ok not to be ok which I repeat to myself when I feel low. 

    I hope this helps, it might not but if not then please remember that you aren't alone and stay away from dr Google. I really struggle with that one! 

Children
  • Hi, thank you for your reply.

    I had my second treatment yesterday. Again it when absolutely fine. I feel no after effects at the moment, which is great! I also use the cold cap, I still have all of my hair at the moment, hopefully it stays that way.

    Yes it does help to hear your advice and tips. It's good to know I'm not alone. I do have lots of support from family and friends and I talk to them a lot! It's such a long journey and hard when you don't know what the outcome will be. I'll just take one day at time. You're right about Google, I know I shouldn't look things up but when you have so many questions going through your head it's hard not too. But I will try and steer clear because it really doesn't help! 
     

    I hope your treatment is going well. Thanks you, take care.

    x