My husband has the opposite problem He was treated successfully with bcg for bladder cancer and he has been clear for 6 years Following blood appearing in his urine a couple of months ago a tumour was found in his ureter Kidney and ureter  removal  not an option as kidney on tumour free side has low function due to previous  kidney stones Consultant reluctant to do anything  other than monitor and laser recurrence whilst it remains  in ureter but it will at some stage get out and the treatment will be palliative 

Would you let me know what treatment you have had and the details of the trial

Good luck with you future bladder treatment 

best wishes 

Wilbert

Hi Wilbert

Just to let you know that my Ronnie did really well on his first BCG. In and out in 20 mins. Did not feel a thing and had no pain after at the loo. So i just hope the next one on Saturday goes as good as the first. He managed the 2 hours and was told to drink after the first hour. We managed to get home in 50 mins so all was well. Thinking of you and David. 

Take care and stay safe

Regards Renny

Glad to hear your John is ok. I will be back to you next Thursday. Take care in the heat.

LOVE sylvie

xx

Thanks John wasnt hungry at 6 which is unusual He said he felt bloated gave him some windeze and we have had cold meats olives and cheese He didnt eat as much as usual but he did eat So now I'm stressed again Sometimes it seems never ending every ache and pain I'm going into overdrive I know its irrational he just drank a lot of water on his bike ride and he did have a cheese scone and a banana but I'm just hyper if he isnt as normal Sorry I'm rambling but the stress seems never ending I know I need to be more rational but ar times it just gets too much.He has gone out to water the garden and Ive opened another bottle of red

Sorry to go on but I think you will understand and just typing has made me calmer 

love

celia xx

Celia i do understand believe me i have the same feelings and thoughts. But he is here and with you and not in hospital and he has eaten .That's what i put into my head every day and keep it there and that is what you should do. Ronnie is deaf. He had meningitis when he was 2 and was in an isolation ward for nearly 2 years and his mother wasn't allowed to pick him up and it took the hearing from his left ear and he only has 45% in his right. So i am very protective of him and that's why i go everywhere with him because he never here's the full conversation. So i really do know what your feeling about John but he hasn't got long to go and it will be over before you know it. Stay strong for him and watch the booze. I am here any time you wont to rant

Love Sylvie xx

Thank you you are a sweetheart I'm very protective of John who altho isnt as deaf as Ronnie does have noise induced hearing loss Plus there are just the 2 of us and like you and Ronnie we have been together for many years A neighbour popped round to ask if we would feed Henry their cat tomorrow as they are at a wedding  and she stayed and had a glass of wine then her husband appeared and had one so I didn't finish the bottle 

Just a blip today already feeling better thanks to you 

When John had his ct scan they I injected frusemide not sure if I've spelled it right it's a diuretic and he spent as he said 12 hours peeing for England Might be worth checking if its in with Ronnie's stuff just in case 

Take care My devout Catholic friend is doing Novena's to St Jude for John so I've asked her to add Ronnie Hope that's ok 

Love Celia xx

So pleased you didn't finish the bottle. I used to drink straight lambs navy rum with ice in my younger days and it has given me an ulcer so i cant drink any more. I met Ronnie in a working mans club. It was his second home. His life was work and the club every day of the week. My sister said come down to the club there's a lovely man with big blue eyes.  So i went down to have a look and the rest is history. We went out together for 4 years because i was waiting for a divorce from a twerp i married and had enough of after 22 month. 46 years this year later and i still love those big blue eyes. My mam used to say he had come to bed eyes. Stay cool tomos and give your John some extra hugs  Thanks for the thought  of the some praying. I am not a religious person but each to there own. We all need some sort of belief in this world. I just thank the very people that keep us alive and have the knowledge to make us better. What would we do without them. 

Love Sylvie.

xx

I met John at a wedding I knew the bride John the groom. how corny When I told my mum I had a date with an usher she said not the one in the shiny suit Er yes shiny suits were fashionable in 1966 She did come to love him once she knew him We were married at the same church 2 years later with  our friends as best man and matron of honour 

I still have my wedding dress and John has his shoes they were 7 guines's He occasionally wears them with his dinner suit or to funerals!

We are lucky we have keepers

love celia x 

I would hate to think i was having to find a husband in this day and age. There all up there own ars....

They spend more time in the bathroom than anyone. We watch first dates on the tv and laugh like hell at some of them. They haven't got a clue how to treat a woman. My Ronnie is a true gentleman. He still opens the door for me and helps me with my coat. I love the way he treats me and not like the twerp before. I just wish i had met him first. Then we would have had more years together. But you know what they say " it always comes to them that wait" 

Off to my bed it's been a long day and i might sleep a bit better tonight know that Ronnie has finished his corse. I will ask about the dye next Thursday to see if there are any side effects and  let you know.

Love Sylvie

xx

Hi Celia

Just got back from the hospital and he had ct with contrast on his wait for it

urinary tract

abdomen

pelvis

thorax

He was in and out in 10 mins. He got 2 letters and they did the lot all in one scan.

That's another one over with.

How long did you have to wait till you found out about John's ct outcome and who did you see. Was it the main man or the guy that does the scans.

No one seams to tell you.anything and if i am not with him i don't find anything out and they wouldn't let me in. I don't think he even tell them he is deaf. 

Peed of with it all.

Keep me informed about John tomos 

Love Sylvie

xx

John had scans if the same areas when I asked about it in the Macmillan group it seems to be the norm We waited 2 eeeks  but I  think  post Covid wait times are longer Thr results go to your  Gp electronically and we got an appt with our Gp towards  the end if the 2 week and he had them and all was ok Actual appt was another 10 days later with consultant 

Hoping John can have treatment tomorrow for the last day ir so he has been tender in a certain part of his anatomy Had some antibiotics in so started them immediately and it is sorting the problem so we shall see

I'll let you know how it goes

I know how you feel the waiting is awful someone I know calls it scanxiety 

Take care

Celia xx

I think the ct scans were for the ureter to see how the little something they found before. I think the other stuff they scanned was to see if there was anything else there. The radio therapy he had 19 years ago in Spain that got rid of his prostate cancer must have spread it about and it's a well known fact that that is what it does. But that therapy saved Ronnie's life so know we have to go threw it all again. I still think it was worth it having that done. It was the consultant at our hospital that said he should have it. But at the time i wonder if he new that all this would happen.

TTFN 

Love Sylvie

xx

I think the ct scans were for the ureter to see how the little something they found before. I think the other stuff they scanned was to see if there was anything else there. The radio therapy he had 19 years ago in Spain that got rid of his prostate cancer must have spread it about and it's a well known fact that that is what it does. But that therapy saved Ronnie's life so know we have to go threw it all again. I still think it was worth it having that done. It was the consultant at our hospital that said he should have it. But at the time i wonder if he new that all this would happen.

TTFN 

Love Sylvie

xx

All went  well had treatment no infection in urine Nurse felt he may not have drunk enough extra  water during heatwave He can stop antibiotics 

Final mitomycin us 1st August as we are away for my birthday weekend then nurse will ring consultant to tell him John has finished the course He said around 6 weeks after course finished he would change John's stent and have a look in the ureter to see what was there 

Best wishes 

Wilbert x

So pleased John got his 5th. Hope you have a nice birthday and get away from all this. 

So i take it he will be having a urethrectomy ? to have a look round to see if the therapy worked. Does John have a stent in all the time. Ronnie had his taken out before his BCG. They said it would be too dangerous to give it with the stent in. He only had it in about 8 week. They might put it back later. No one says anything about that. No good guessing is it just wait and see. So i will still let you know how Ronnie goes next Friday at the bowl ct and wont expect to here from you with you been away. Enjoy your selves. You defo deserve it both of you. 

Love Sylvie xx

Yes John  will be having urethrectomy  He had the stent put in March during previous one Consultant said it could stay in for up to 6 months It hasn't given him any trouble. We think he is planning to change it but will ask when we next.see or speak to him 

Please let.me know how Ronnie gets on and I will certainly reply 

Love Celia  

Sounds just the same as Ronnie had last 24th dec.He was sent home with a catheter in and he had a turb x the stent in. He was really put through it that day. I was sat 4 and a half hours waiting for him to come out. He had the catheter in for 17 days and it should have only been in for 6. I ended up phoning the hospital and putting my foot down and threatened to speak to his consultant about it. He even had to go to another hospital to have it checked as the district nurse thought it was backing up. She phoned for an ambulance and they said it would be 4 hours. 8 hours later we got a taxi.I have  never seen Ronnie so frightened. They flushed the catheter out checked his bladder for urine and he was good to go.  We got another taxi and got home at 12.45 am the next morning. They had him in the next day and took it out and he was fine. This is the only thing he is not looking forwards to when he goes back for the camera up  Cos when they put the camera up if they see a tumor they take it out and where back to square one. Doesn't bear thinking about. Where ever you are going have a good time and i will be in touch next Friday 

Love Sylvie xx

What a nightmare experience let's hope both are men are found to be tumour free

We are off to Chester having afternoon tea at the Grosvenor but as it's full we are staying at another hotel I'm also scheduling in a trip to Cheshire oaks outlet village The situation at Manchester airport is horrendous so planned mini break to Florence postponed to September and then depends on dates at hospital 

Going to Scarborough on Sunday just for the night I fancied a trip to the seaside and Blackpool  and St Anne's tho nearer dont do it for me altho they are both very popular The spa orchestra are doing a teddy bears picnic concert so might take my ancient teddy bear and go to listen 

love

Celia x

ENJOY

XXXX:

Hi Celia,

Ronnie had his colonography today to check on his bowl because of the divicular decease. He was in and out in 30 mins. He was ok but they said the results would go back to the doctor that asked for it so don't know when that will be. He got a date for his colposcopy on the 24th Aug. There sending him to a private clinic nearer where we live so we are well pleased. They sent an email with the date and time on and said a letter was in the post and all the prices was on the net for this  private clinic and the procedure Ronnie is having was £1300.So that makes it 6 week since he had the last BCG. So waiting for the outcome of that later. Waiting for the out come of the urinary tract ETC with contrast from the 21st July. So don't know when we will here about that. It's enough to send you crazy. Anyway i hope there not going to do anything else to him till we here the results from the cystoscope on the 24th Aug and lets have a bit of peace. 

Hope you had a nice birthday and your trip to Scarborough was good. Let me know how your John goes on with his last dose. Take care until the next time

LV Sylvie xxx

Glad things went ok It seems never ending at times I know 

It's good that you have the colposcopy nearer home one less thing to stress about 

Off to Chester tomorrow Scarborough was nice but the spa cliff lift was out of action bit of a hike up the the esplanade but we took it slowly 

Take care

Love Wilbert x

Been in that lift many a time. Enjoy Chester.

Speak later 

Lv Sylvie

Hi Celia i sent a reply but i don't see it on the chat. So i will try again

Ronnie got a copy letter from our local doc from the urology dep. It said that he had is 6 BCG and  was awaiting the cystoscope to see if the BCG has worked. Also that he would be back for further treatment at the end of Oct. The letter was dated 16/7 the day Ronnie had his lat BCG. Why would they say he would be back for further treatment when he doesn't go for the cystoscope till the 24th Aug. Don't get it. Any ideas.

Love Sylvie xx