Ureter cancer now spread to bladder

Ureter tumour removed July 2021. Follow up chemotherapy from November 2021 to January 2022.

CAT scan clear. 

Had check up cystoscopy last week and discovered three tumours in bladder.

Consultant planning to shave these off next week.

Very disappointed with current situation as chemotherapy was based on a successful trial.

Wondering what other surprises could show up in different locations.

Parents
  •  My husband has the opposite problem He was treated successfully with bcg for bladder cancer and he has been clear for 6 years Following blood appearing in his urine a couple of months ago a tumour was found in his ureter Kidney and ureter  removal  not an option as kidney on tumour free side has low function due to previous  kidney stones Consultant reluctant to do anything  other than monitor and laser recurrence whilst it remains  in ureter but it will at some stage get out and the treatment will be palliative 

    Would you let me know what treatment you have had and the details of the trial

    Good luck with you future bladder treatment 

    best wishes 

    Wilbert

  • Hi Wilbert

    Just to let you know that my Ronnie did really well on his first BCG. In and out in 20 mins. Did not feel a thing and had no pain after at the loo. So i just hope the next one on Saturday goes as good as the first. He managed the 2 hours and was told to drink after the first hour. We managed to get home in 50 mins so all was well. Thinking of you and David. 

    Take care and stay safe

    Regards Renny

  • I'm like you I'm not keen on driving When I had my lovely Rover mini which was British racing green with a white roof I was happy driving but Unfortunately it reached the end the end of the road Glaucoma plus my lack of confidence means I rarely drive these days Life does seem full of hospital appointments 

    I try to counter them with a nice lunch out but it's hard when I feel like just pulling over the duvet and staying in.bed 

    Hang on in there every thing will pass and better times ahead for us all I I Hope 

    lots of live Celia ps I'm a bit tipsy xx

  • John had treatment number 4 all went  ok He is having a sleep now 

    Fingers crossed for Ronnie tomorrow let me know how he gets on

    love to you both 

    Celia xx

  • Hi Celia

    We hope your John is feeling OK today and taking it easy. Ronnie had his 6th and last BCG this afternoon and we are so pleased. They told us they had put in for a date for the camera up to see the results at the end of Aug and we will get a date through the post. So thats one thing he got through .

    Another one to get through next Thursday IE dye ct scans in 5 places. 

    Take care keep in touch 

    Love Sylvia xx

  • John is ok been out on his bike today I visited a friend in hospital this afternoon Unfortunately  she said she was in ward j4 and she was actually in F 3 Took me 20 minutes to locate her

    Glad Ronnie has finished his course of bcg now it's all wait for tests and wait for results I really hate the waiting 

    Take care and keep me posted

    Love

    Wilverxx

     

  • Glad to hear your John is ok. I will be back to you next Thursday. Take care in the heat.

    LOVE sylvie

    xx

  • Thanks John wasnt hungry at 6 which is unusual He said he felt bloated gave him some windeze and we have had cold meats olives and cheese He didnt eat as much as usual but he did eat So now I'm stressed again Sometimes it seems never ending every ache and pain I'm going into overdrive I know its irrational he just drank a lot of water on his bike ride and he did have a cheese scone and a banana but I'm just hyper if he isnt as normal Sorry I'm rambling but the stress seems never ending I know I need to be more rational but ar times it just gets too much.He has gone out to water the garden and Ive opened another bottle of red

    Sorry to go on but I think you will understand and just typing has made me calmer 

    love

    celia xx

     

  • Celia i do understand believe me i have the same feelings and thoughts. But he is here and with you and not in hospital and he has eaten .That's what i put into my head every day and keep it there and that is what you should do. Ronnie is deaf. He had meningitis when he was 2 and was in an isolation ward for nearly 2 years and his mother wasn't allowed to pick him up and it took the hearing from his left ear and he only has 45% in his right. So i am very protective of him and that's why i go everywhere with him because he never here's the full conversation. So i really do know what your feeling about John but he hasn't got long to go and it will be over before you know it. Stay strong for him and watch the booze. I am here any time you wont to rant

    Love Sylvie xx

  • Thank you you are a sweetheart I'm very protective of John who altho isnt as deaf as Ronnie does have noise induced hearing loss Plus there are just the 2 of us and like you and Ronnie we have been together for many years A neighbour popped round to ask if we would feed Henry their cat tomorrow as they are at a wedding  and she stayed and had a glass of wine then her husband appeared and had one so I didn't finish the bottle 

    Just a blip today already feeling better thanks to you 

    When John had his ct scan they I injected frusemide not sure if I've spelled it right it's a diuretic and he spent as he said 12 hours peeing for England Might be worth checking if its in with Ronnie's stuff just in case 

    Take care My devout Catholic friend is doing Novena's to St Jude for John so I've asked her to add Ronnie Hope that's ok 

    Love Celia xx

  • So pleased you didn't finish the bottle. I used to drink straight lambs navy rum with ice in my younger days and it has given me an ulcer so i cant drink any more. I met Ronnie in a working mans club. It was his second home. His life was work and the club every day of the week. My sister said come down to the club there's a lovely man with big blue eyes.  So i went down to have a look and the rest is history. We went out together for 4 years because i was waiting for a divorce from a twerp i married and had enough of after 22 month. 46 years this year later and i still love those big blue eyes. My mam used to say he had come to bed eyes. Stay cool tomos and give your John some extra hugs  Thanks for the thought  of the some praying. I am not a religious person but each to there own. We all need some sort of belief in this world. I just thank the very people that keep us alive and have the knowledge to make us better. What would we do without them. 

    Love Sylvie.

    xx

Reply
  • So pleased you didn't finish the bottle. I used to drink straight lambs navy rum with ice in my younger days and it has given me an ulcer so i cant drink any more. I met Ronnie in a working mans club. It was his second home. His life was work and the club every day of the week. My sister said come down to the club there's a lovely man with big blue eyes.  So i went down to have a look and the rest is history. We went out together for 4 years because i was waiting for a divorce from a twerp i married and had enough of after 22 month. 46 years this year later and i still love those big blue eyes. My mam used to say he had come to bed eyes. Stay cool tomos and give your John some extra hugs  Thanks for the thought  of the some praying. I am not a religious person but each to there own. We all need some sort of belief in this world. I just thank the very people that keep us alive and have the knowledge to make us better. What would we do without them. 

    Love Sylvie.

    xx

Children
  • I met John at a wedding I knew the bride John the groom. how corny When I told my mum I had a date with an usher she said not the one in the shiny suit Er yes shiny suits were fashionable in 1966 She did come to love him once she knew him We were married at the same church 2 years later with  our friends as best man and matron of honour 

    I still have my wedding dress and John has his shoes they were 7 guines's He occasionally wears them with his dinner suit or to funerals!

    We are lucky we have keepers

    love celia x 

  • I would hate to think i was having to find a husband in this day and age. There all up there own ars....

    They spend more time in the bathroom than anyone. We watch first dates on the tv and laugh like hell at some of them. They haven't got a clue how to treat a woman. My Ronnie is a true gentleman. He still opens the door for me and helps me with my coat. I love the way he treats me and not like the twerp before. I just wish i had met him first. Then we would have had more years together. But you know what they say " it always comes to them that wait" 

    Off to my bed it's been a long day and i might sleep a bit better tonight know that Ronnie has finished his corse. I will ask about the dye next Thursday to see if there are any side effects and  let you know.

    Love Sylvie

    xx