Hello lisals, I haven't got the same type of cancer that you have got, and I can't really give you any advice, but I Noticed that you have not had any replies and I just wanted to let you know that you are not alone.  Have you  tried asking your MacMillan nurses for advice on how to  cope with your particular type of cancer?  Good luck mate and let us know how you get on, x

Hi Lisa and welcome to the Cancer Chat community.

I'm sorry to hear about your tumours and how they are affecting you. I hope this information and advice we have on looking after and living with fungating tumours will help make things more manageable more you but if you'd like to talk things through with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very friendly, and supportive, and will do all they can to help.

I can see you're received some support from one of our lovely members already and hopefully you will hear back from others who have contended with this diagnosis soon as well.

Kind regards,

Steph, Cancer Chat Moderator

Thanks so much for replying!  That's so kind, I was feeling a bit lonely out there in the www!  My CNS is attacking it from the treatment side rather than symptom, which is wait and see what the chemo does.  Trouble is the chemo doesn't seem to be doing much and they've already had to reduce it to 80% to avoid hospitalisation after I have it each time!  I'm gonna ask about Ekectrochemotherapy, something the nurses on here sent through a link about and see if that's an option!  My face is literally melting away!  I look like a villain from a Marvel Comics Blockbuster!  

Are you happy to talk about your cancer? I wonder how you're doing?

I rang the nurse line before posting this, tbh, she just kept saying she didn't really know much about it.  Your links were fab though, I've emailed my CNS and asked her if we can table it for discussion at my next treatment day.

Thanks so much ...and lovely to get a reply.

Lx

Hi Lisals, yes I am happy to talk about my cancer.  Well, I have had breast cancer twice, and it was in remission for quite a while but I was recently told that it has spread in to my lymph nodes and my lungs.  As ypu probably know, this is stage 4, and at this point I can not be cured, I am now in the palliative care stage.  I must say that I don't actually feel ill.........I mean, yes I get aches and pains and I sometimes feel nauseous and very tired, but I am still able to take care of my husband who is himself dangerously ill, and I am his carer.  We don't have children, in fact we only have each other and my biggest worry is what will happen to him if I go first, but of course, I know that the best I can do is take each day as it comes and TRY not to worry too much about the future.  I really hope you get the help you need lisa, it sounds like a nightmare what you are going through, and I am sure that other folks on here who are going the same thing will give you some good advice.  Please feel free to speak to me whenever you want lisa, good luck mate, Violet, xx