Fungating Tumour Head and Neck

Anyone got any advice for me? I now have 4 sinuses that have broken through my fungating tumour.  They look repulsive and I feel like I'm rotting from the inside out.  At times they're quite painful.  They're too tricky to dress myself now, so a district nurse team come in and dress them once a day following a plan from the  Tissue Viability Team.  I'm desperate to stop the rot....has anyone out there had something similar that could advise how to improve the situation or at least live with it more comfortably?  My oncology team don't seem to have much to offer.

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  • Hi Lisa and welcome to the Cancer Chat community.

    I'm sorry to hear about your tumours and how they are affecting you. I hope this information and advice we have on looking after and living with fungating tumours will help make things more manageable more you but if you'd like to talk things through with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very friendly, and supportive, and will do all they can to help.

    I can see you're received some support from one of our lovely members already and hopefully you will hear back from others who have contended with this diagnosis soon as well.

    Kind regards,

    Steph, Cancer Chat Moderator

  • I rang the nurse line before posting this, tbh, she just kept saying she didn't really know much about it.  Your links were fab though, I've emailed my CNS and asked her if we can table it for discussion at my next treatment day.

    Thanks so much ...and lovely to get a reply.

     

    Lx

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