CT scans

Hi everyone

 

I have stage 4 NED at the moment, long may it continue.  Melanoma turned up in my right lung 3 years ago 13 years after the cutaneous one.  It was removed and  I had another scan.  Because there was no further disease present it was suggested that I took a watch and wait approach.  So far so good, however the iodine tracer in the CT scans is so tortuously  painful. I get stressed leading up to a scan, don't we all? But the pain is making me fear it so much I start to shake as soon as i reach the hospital.  I can't find anyone else who is affected this way, the internet says CT scans are painless.  I also cannot find any case histories with other stage 4 who are watching and waiting.  The papers i read are unaminous saying that routine scans do not significantly increase life expectantcy. I moved areas shortly after the operation and I have only seen my new oncologist once, because of covid.  I do not want anymore scans but I don't know what to do? 

  • Had a stoma as a result of illium cancer Oct 2020. Gien Plen Vu to clear guts before colonoscope examination. Finished in hospital as a result of losing control of my muscles Told by stoma nurse that Plen Vu was not appropriate for illium. Examination not completed. Spent four days in hospital. Bodge job done of rewording of locally produced booklets on Illium and colon problems done on my suggestion. Had reversal of stoma 8th Dec 2021. 

    Had iodine CT scan for whole body Jan28th. Collapsed afterwards. blame iodine.

    Sun 6th feb had colonoscope of lower part of bowel. Polyps diverticulosis infection. Full colonoscope to be scheduled. Lost 5Kg weight. Blood in faeces. 

    i believe the days that doctors  should be regarded as Gods should with the internet be dimishing.