Metastatic breast cancer

Hi i was diagnosed with stage 4 metastatic breast cancer a week ago and still in turmoil i am 55 and never thought this would happen to me. I am staying positive for myself and family so was told it is not curable just can be managed one minute i am ok the next a cloud of grief overcomes me....so treatment plan is taking letrozole i started it a few days ago fingers crossed my tumour shrinks as 5 cm size and also in my Lymph nodes and collarbone.

Much love to all the others out there getting through a cancer disgnosis xx 

  • Thank you some wise words there I need to listen to. Best wishes on your journey too. I really appreciate your replying quickly. So you continually take medications? 
    xx

  • Hi, yes I take letrazole,  abermaciclib daily and have monthly calcium injection, apart from the abermaciclib causing nausea at times for most part I feel great, I do have the odd wobble on days but I just try to take it easy it soon passes, my tumour markers are good so I try just to get on with living with it.  It's amazing how your mind and body starts to cope, also I think this time of year is worse because you can't get out and about so much but in a few weeks time with the sun shining again you will get a massive boost to mind and body.  I wish you well on meds and hope your plan serves you as well as mine seems to be doing. Hope you do manage to get away somewhere nice it does wonders for you wellbeing xx

  • Stage 4 breast cancer is not the same as primary breast cancer. Appreciate people telling others “you will get through this or you can kick its butt” but no not really, nothing near the same

  • Hello I was wondering after reading this how your treatment is going 

  • Hi Mustang,  I see this post is over 4 years ago.  Are you having treatment for metastatic breast cancer?  

  • Hi yes i am , I just wondered if this lady was artillery with us as I have the sane diagnosis as her 

  • Hi Mustang I have secondary breast cancer with bone mets in most of my bones.  I am having exemastane, ribociclib and denosumab and Adcal.

    Lee x

  • Hi Paula, sorry to hear your diagnosis.  You are the first person I have read about that has a similar diagnosis to myself.  I have breast cancer 16cm which spread to my lyphm nodes and my bones.  This was diagnosed last December, I had chemo for 13 weeks, which contained the cancer in my breast and every three weeks I have a phesgo injection and every six weeks I have a bone injection, in addition I started taking Letrazole on 17th May.  The side affects have taken some getting used to, as I have chronic diarhrear, some sickness and occasional headaches, plus constant muscle ache,  But I just have a different outlook on everything now, I am so grateful to still be able to have treatment.  I try and do as much as i can, its taken a while to come to terms with that I am not able to do the things I did before, but last year I didn't think I would still be here.  I truly believe that having a positive attitude really helps, and I am pleased to hear that you are, it also helps your family.  I have two grown up girls and its been so hard for them, but when they see how well I am coping they are just as positive.  I hope you get on well with the Letrazole.  wishing you lots of good luck with your treatment its amazing what treatment you can have now xxx

  • Hi Maggie,  I was diagnosed with secondary breast cancer in September last year.  I have bone mets in pelvis, ribs, skull and spine.  I started treatment in December.  I also have a different outlook now than last year.  I did not know if I would see Christmas but his year I feel a lot more positive.  My husband and I even went to Portugal in September something I didn't think we could do when I was diagnosed.  My oncologist said a positive attitude helps so much and he is right.  So good luck to you as well.

    Lee x

  • Dear Lee, 

    Oh I as pleased to hear hear how positive you are and how lovely that you and your husband travelled to Portugal.

    I have booked a few days away next year too. 

    Wishing you all the very best with your journey. 

    Maggie xxx