Hello Mellow92

Well, I’m not surprised you’re confused with all that going on and nothing properly explained to you. The cells from the lletz always go to be biopsied to confirm exactly what they are. You have the lletz normally because abnormal cells have been identified-these are pre cancerous and NOT cancer but the cells are analysed in the lab just to confirm this. 

High grade dyskariosis is the most severe type of abnormal cell, still not cancer, and should be removed which is presumably why you’ve had lletz procedures in the past. Left untreated these cells could, although they may not, turn to cancer. The point of the screening programme is to identify these cells before they do become cancer and remove them. You only have a certain amount of cervix, so only a certain number of lletz procedures may be possible, but jumping to a hysterectomy might be premature. The hysterectomy would not “cure” the HPV which is the cause of abno4mal cells, and these cells could still return in the future even without a cervix. They can return in the vagina or vulva. 

The next thing is to get the biopsy results from the lletz. They will want to have achieved clear margins, which means that all the cells have been successfully removed, and you would return for a test of cure in 6 months. 

I’m not sure if I have helped, but do hope so. If you have other questions, please ask away. I should say that I have not had 3 lletz procedures myself as I had a cervical cancer diagnosis, but I have learned a lot along the way! x

Thankyou Minska,

So are the cells i have no classed as pre cancerous? I thought I went . Low grade..high grade then pre cancerous. Cancerous?  So would they all just be classed as pre cancerous because they can change?.

I don't remember been this anxious worried or scared the last time i was waiting for results. 

I also at somepoint am sure I had a clear smear since going to the hospital.

- am I correct then in thinking these biopsy results now will either be.

Pre cancerous.

Or still abnormal but thell of hopefully removed all the abnormal cells ? So then it'll be 6 months before they call me back to see if the lletz removed the abnormal cells and I could potentially get a 'normal' smear next time ?

I never heard of the test to cure until early house this morning so bit unsure about all of that. Is it just to check that the procedure removed all abnormalities? 

My results were due today. Mr postie came nothing so I called just to see if they had the results back. They said they couldn't give me the results over the phone which I did figure was going to be the case  but the secretary said the consultant had my results back and they was in his basket si she was going to email him today and chase up he looking st them I should hopefully hear something in the next week 

So another week wait  but atlesdt the results are back now xx

There are 3 different stages of abnormal cells and they are all described as pre cancerous: you can have mildly abnormal changes(CIN1), moderately abnormal (CIN2) or severely abnormal )CIN3). 

You may have had a clear smear at some point but these abnormal cells are caused by the HPV virus, and if your immune system can’t clear the virus then the abnormal cells can return at any of these levels of abnormality. There is no cure for the HPV virus, but trying to have a strong immune system can suppress it so it doesn’t cause any issues. 

Your results from the lletz should identify which level of abnormality was present and hopefully successfully removed. Then you would have a call back in 6 months to check that everything has gone back to normal and the precancerous cells have gone. 

It’s normal that a secretary won’t give results over the phone, but hopefully you will get them soon and be able to relax! x

Okay getting the hang of it now thankyou, 

I have a crap immune system I have chronic brittle asthma and been on a cocktail of medication since 2013. Main one is 40mg prednisolone a day and then frequent antibiotics for chest infections. So seems like until thsts sorted then my immune gonna be terrible. 

However tho my asthma does seem to be going in the correct direction this year despite everything else going wrong so silver lining I suppose .

I did ask the gynecologist about the risks of me becoming  pregnant ASLONG as these come back ok. And he seemed  really positive and reassuring and supportive about that is possible and if the cells come back during pregnancy then thst wouldn't be a first and they have had thst happen many times aswell.  And also thst frequently pregnancy has also made the abnormal cells go. (So I'm guessing if there in your cervix and during pregnancy and labour your cervix lining thins would make sence that any abnormal cells would be going too)So even tho hysterectomy scared me it is all seeming positive as it can be I suppose. 

Seems like I shud be more worried about if they are cancerous or not than a hysterectomy. I think it's because I had the vision thst if it was pre cancerous a hysterectomy will remove that situation. As I didn't realise that it can then be on your vaginally walls etc which after thinking about it would again make sence if their in yiur cervix and cervix lining this and has to go somewhere or periods maybe helping the cells move to the vaginally walls.?

Does that make sence sorry feel like I baffling just trying to get my head round as much as I can xx

It’s certainly the case that a vaginal birth can clear the abnormal cells, though if you get pregnant they should monitor your cervix carefully in case it needs a stitch putting in. I know of many ladies who’ve had successful pregnancies after treatment for abnormal cells. 

I can completely understand that you need to get things clear in your head and make sure you fully understand everything. I think in relation to HPV and abnormal cells doctors are often guilty of not giving women all the information they need and it leads to confusion and often unnecessary panic and worry. 

Things are going as well as they can for you at the moment I think. You’ve been identified in the screening process as having abnormal cells and you’ve had treatment. Fingers crossed that’s all you need now. xx

Thankyou you have really cleared ALOT of confusion and uncertainties in my head today.

No I definitely think they need exain HPV better there is poster's In the waiting room  but I'm not sure about other hospitals but they should maybe out together or get a leaflet they can had ir post with people who have HPV the hospital I went to didn't do this. It was like oh you have this I could turn to this if untreated.  I think their should be alot more information given to stop the panic maybe *** a more straightforward what's next. I even tried looking on line and I seemed to be going round in circles  

I definitely feel alot more re assured now and have a much better understanding of what is next. I looked into other treatments than hysterectomy and their is a couple thats fir the same thing but none of these was mentioned at my appointment either he just seemed to kind of jumped to well if this don't work hysterectomy. Like thst was the only option left after. And that doesn't seem the case. There seems a few others. I may not be able to have those few others the one I can't see why I wouldn't so if it comes to it I will definitely be asking more about that procedure.

Thankyou so much Minska. Hope all is well with you  

I’m glad I was able to help a little in terms of clearing things up for you. I’d be interested to know what other treatments you found in your research if you don’t mind sharing that. xx

www.macmillan.org.uk/.../cervical-cancer-surgery

The Trachelectomy is the one I was referring to which I think I will be asking for more information on. It depends on where the cancer is. But it seems to be the same grades and places as Hysterectomy which is why it stuck in my head...  I find another site with more information on it not sure which that was.

but the 3 sites I was looking on was this cancer research, Macmillan,  and jos cervical site aswell. 

Xxx

Good sites to look at for information, but a trachelectomy, which is removal of the cervix, is performed for early stage cancer. You haven’t had a cancer diagnosis because you just so far have abnormal cells which are not cancer. The lletz is the same as a leep. Cone biopsy might be an option as it takes more than the leep. xx