I likely have metastatic cancer

I have had the year from hell, it all started last November and my life has consisted of going back and forth to doctors. My GP thought me to be a hypochondriac I paid to see a private gastroenterologist yet he didn't pick up the problem. I then decided to get a private CT scan and it looks as though I had mets in my liver my lungs enlarged lymph nodes and ovarian cyst. They don't know the primary cancer site yet however the only place I haven't had scanned is my breasts. No lumps just chest pain. My symtoms started with crippling fatigue and bowel issues shortness of breath. I have to have a mammogram and an endoscopy however I don't even know what exactly is happening my GP is not telling me anything refuses to provide pain relief and the last appointment I have he honestly said "your not in pain" and "be gone with your women" as I left the office. I was literally so full of poop the CT scan couldn't really see inside my bowels. I wish one doctor had listened to me yet everyone would rather beleive me to be a hypochondriac than give me the benefit of the doubt until now. I obviously am not going to have a lot of time if I have mets on my lung and my liver whatever type of cancer this is. I am 31 and not ready to die but have to accept it is a possibility if not a sure thing. My bloods were off for a full year yet my GP still wouldn't listen. My GP surgery has tampered with my medical notes I only found this out at a and e when a doctor when through my notes with me. On the day I had the private CT scan I am listed for having a biopsy I have never had one in my life. They also diagnosed me with enlarged inguinal lymph nodes and a hernia which the CT scan picked up. I am on two week pathway to see a specialist and honestly do not know how much more I can take. If only one doctor had thought me worth testing on the NHS I wouldn't be in this awful position. I sometimes feel sucidie is the only option now. 

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  • Hello Lizzie

    I am so very sorry to hear about all that you've been through over the past year and that now you're facing a possible diagnosis of metastatic cancer. I can't begin to imagine how lost and anxious you're feeling after struggling over the past year to feel heard by your GP. 

    It's good to hear that you are now waiting on an urgent appointment with a specialist and hopefully you will be seen very soon. It's understandable that until you have definitive answers about your diagnosis and the next steps that this is going to be a very difficult time and I want you to know that you're not alone. We're so glad that you reached out to connect with others here on the forum. 

    You mention that you sometimes feel as if suicide is the only option now. I think many people here will understand the repair that comes with facing a possible diagnosis such as you are. Do you have friends and/or family around you to support you Lizzie? Please do speak to them and let them know how you're feeling. If you find that the feelings become too much or you'd rather speak to someone in confidence then you can always pick up the phone to the Samaritans. They're available 24/7 and are always there to listen. 

    I also wanted to suggest that maybe you might want to give our team of nurses a call at some point ahead of your appointment. I'm sure they will be happy to talk things through with you and offer any advice or reassurance that they can as well as help you think about the kinds of questions you might want to ask at the appointment. If you'd like to chat with them they're available Monday to Friday 9 am to 5 pm on 0808 800 4040. Have a think about giving them a call. 

    Please know that you're welcome to post here anytime you feel the need to offload or to chat about how you're feeling. I'm sure that the community will do what they can to support you through this time. 

    Keep in touch Lizzie and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

     

Reply
  • Hello Lizzie

    I am so very sorry to hear about all that you've been through over the past year and that now you're facing a possible diagnosis of metastatic cancer. I can't begin to imagine how lost and anxious you're feeling after struggling over the past year to feel heard by your GP. 

    It's good to hear that you are now waiting on an urgent appointment with a specialist and hopefully you will be seen very soon. It's understandable that until you have definitive answers about your diagnosis and the next steps that this is going to be a very difficult time and I want you to know that you're not alone. We're so glad that you reached out to connect with others here on the forum. 

    You mention that you sometimes feel as if suicide is the only option now. I think many people here will understand the repair that comes with facing a possible diagnosis such as you are. Do you have friends and/or family around you to support you Lizzie? Please do speak to them and let them know how you're feeling. If you find that the feelings become too much or you'd rather speak to someone in confidence then you can always pick up the phone to the Samaritans. They're available 24/7 and are always there to listen. 

    I also wanted to suggest that maybe you might want to give our team of nurses a call at some point ahead of your appointment. I'm sure they will be happy to talk things through with you and offer any advice or reassurance that they can as well as help you think about the kinds of questions you might want to ask at the appointment. If you'd like to chat with them they're available Monday to Friday 9 am to 5 pm on 0808 800 4040. Have a think about giving them a call. 

    Please know that you're welcome to post here anytime you feel the need to offload or to chat about how you're feeling. I'm sure that the community will do what they can to support you through this time. 

    Keep in touch Lizzie and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

     

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