Still waiting

Hi everybody

I am new to this but Ilove the support you offer each so i thought i would give it a go.

This is second breast ca, my first was 20 years ago I had a masctectomy, chemo and radiotherapy.  

This time i found a lump back in June,  I had a theraputic mammoplasty at the begininng of sept, i feel i have recovered physically quite well.  But i am still waiting to hear if i will need chemo again.  The waiting is so awful and mentally draining, I was given the impression that my treatment would happen quicklyand i wouldn't need chemo so to be still waiting to start the second part of the treatment is begininng to take its toll.    I am having Oncotype test, my score was  26 so i am told it could go either way.

The waiting is most defintely the worst part.

X

Parents
  •  

    Hi Liz,

    A very warm welcome to our forum. 

    I am so sorry that you have had to go through all of this again. I have had 2 bouts of breast cancer within the past 12 years too, but both of mine were within the first year and I had a double mastectomy. Have you contacted your consultant's secretar, or your breast care nurse to see what is happening? It does seem a long time to wait to know what treatment you are likely to have. 

    Have you had your oncotype test yet, or are you still waiting for that too? I hope that it all goes well .I would certainly advise you to make a phone call to find out.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi,

    Thanks for replying.   My oncotype test was 26, so on the edge!

    I been ringing rhe breastcare nurses regularly, every 2 weeks because everytime i speak to somebody i am told it will be another 2 weeks.  I am also  waiting for the results of the BRCA test.  I am told they are short staffed and covid is having an effect!  But today marks another 2 weeks so I do hope to hear today.

    Its frustrating because i feel well enough to return to work now, but dont want to if I am about to start my treatment and will need more time off.  I do think in my heart of hearts I know I will need chemo and i just want to get it started, i reacted quite badly last time so its quite hard waiting to fomd out if i am going to be going through that again.   And i have children that are quite anxious about the results of the BRCA as i have quite a strong family history.

    Regards  xxx

  •  

    Hi Liz,

    I do hope that you hear today. Try not to worry too much about the chemo. There are different types and some cause more side-effects than others. Hopefully, you will have a different type than you had last time. 

    I am hoping and praying that you don't have the BRCA gene.

    Kind regards,

    Jolamine xx

Reply
  •  

    Hi Liz,

    I do hope that you hear today. Try not to worry too much about the chemo. There are different types and some cause more side-effects than others. Hopefully, you will have a different type than you had last time. 

    I am hoping and praying that you don't have the BRCA gene.

    Kind regards,

    Jolamine xx

Children
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