Worried mamma here!!!

Hi all this is my 1st ever post. Three years ago I was diagnosed with CML (chronic myeloid leukaemia), as far as cancers go this is one of the good ones. Initially I had some not so nice side effects from my TKI but they've mostly levelled out. Fast forward to now I had some irregular bleeding between periods and after intercourse, very quickly I was referred to the gynaecologist and yesterday was my appointment. I had an internal scan where she found a 8cm cyst in my right ovary (blood test taken). She also took 3 clippings from my cervix (for biopsy)! Had precancerous cells 18yrs ago.

I am a nervous wreck here. I have 4 kids aged 21-6yrs old. I worry about the cml advancing all the time now this extra worry. Actually had palpitations a few mins ago which made me seek you all out! How can I stay calm for my mental health, I don't want to go on a downward spiral while waiting for these results. 
 

Thank you 

  • Hello Mammabear21

    I'm sorry to hear that you've recently had some health concerns which have needed further investigation. It's understandable that you're feeling anxious - I think most people would be even without your previous history of CML. 

    We know that waiting for results can be a really difficult time and lots of people struggle. It can really help to talk things through with someone and I wonder if you'd find it helpful to have a chat with one of our team of nurses. I'm sure they will be able to give you some information and support to help whilst you're waiting for news. If you'd like to speak with them they're available Monday to Friday 9 am to 5 pm on 0808 800 4040. 

    I hope that you have some news and reassurance from the Consultant soon. Do let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  •  

    Hi Mamabear,

    A very warm welcome to our forum, although I'm sorry to hear why you've joined us. I think I speak for all of us here, when I say that we empathise with how you are feeling. Waiting for results is always a stressful time and, most of us would admit that it is one of the worst times of our cancer journey.

    Our moderator Jenn, has given you advice about phoning the nurses. Unfortunately, they are not here at the weekends, but will be back on Monday. They may be able to allay some of your fears.

    Did the Gynaecologist say when you are likely to get your results back? This waiting period always seems to take forever. To help to pass the time try to keep yourself preoccupied with something else, as I'm sure that this is the overriding thought on your mind just now. Keeping yourself busy will also help to while away the time. Could you maybe get involved in doing a jigsaw with the children? This can concentrate the mind and pass the hours.

    Are you managing to sleep at night? This can be a problem for many of us and, lack of sleep only adds o our problems. If you are really struggling, have a word with your GPs and see if they can prescribe something to help you through the next couple of weeks. Don't forget to mention the palpitations if you speak to them.

    I sincerely hope that you get good news at the end of all this.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi jolamine

    I'm still going out of my mind, but no news is good news so they say, or at least I hope so. She said I would hear from her secretary to arrange a telephone consultation re the cyst situation, she is going to remove it I'm pretty sure but had to do the blood test first to make sure it's not cancerous.

    I am hoping as it's just a telephone consultation and she doesn't want to see me she's thinking all is well and is just being cautious (which I'm grateful for).

    So sorry just replying but just seen the replies

  • Hi Jenn.

    sorry for the late reply! Please see more detailed reply here probably above. I appreciate you taking the time . 

  •  

    Hi Mammabear,

    I can understand why you feel as you do, but would agree that a telephone conversation sounds hopeful. I forgot to mention in my last reply that we always advise people to stay away from the internet until they know what they are dealing with. Otherwise you will only scare yourself further for no purpose.

    Here's hoping that you hear soon.

    Kind regards,

    Jolamine xx