Hi Davidah,

A very warm welcome to our forum. I am so sorry to hear your story and to heat that, despite all that you've been through you are still having challenges. I sincerely hope that all goes well tomorrow and that no cancer cells are found in the fluid around your lung.

Please let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Im not sure what i think after my apointment today. The doctor doing the procedure couldnt find any fluid . He even went away to check the original scan;  just to be sure. The ultrasound wasnt showing any fluiid. So an x ray was done.  He said just to show the consultant what he was seeing.  So, im not sure if this is good or bad. He said he could see "damage" from radiotherapy ( my words) but there was no fluid around my lung,

 No fluid to test to for cancer cells has to be good i guess. Will find out in june when i go back to see the consutant.

Hi Davidah,

Many thanks for the update. This certainly sounds like good news. Have you got a date to see the consultant in June?

Please keep in touch and let us know what he has to say.

Kind regards,

Jolamine xx

My apointment is 7th of June. Its not a telephone one this time. I dont like the telephone ones. I prefer face to face because i can never remember what ive been told and my wife  gets annoyed.

Hi Davidah,

Can your wife not attend the consultation with you? Most hospitals allow this when you are getting test results. You will find it helpful to write down any questions you may have in advance of your appointment. This way you won't forget anything important.

I agree. I prefer to talk to the consultant face to face too. I hope that it turns out to be good news after all. Have you decided when you plan to return to work?

Kind regards,

Jolamine 

 My wife comes with me to face to face consutations. Its tough on her. The restrictions meant she coulsnt visit me i when i was admitted. Or having treatment, she had to wait in the car.Im going to speak to the consutant. See what he says. Ive been in the same job for 43 years. Its so important to me. But i hope to go back in July. 

My wife and i  are going away  today. Up the north of scotland to visit family. We havnt seen them since last september. i was too ill to travel and then lockdown and shielding. 

Have a nice weekend

David

Hi Davidah,

If your appointment on 7th is face-to-face,surely your wife can attend too? It must have been particularly tough on both of you with no visiting allowed while you were in hospital. I do hope that you can get back to work in July - that's a great record, 43 years in the same job - well done!

I hope that you both enjoy your trip to the north of Scotland this week and that you manage to get some good weather.

Kind regards,

Jolamine 

Hi Davidah,

If your appointment on 7th is face-to-face,surely your wife can attend too? It must have been particularly tough on both of you with no visiting allowed while you were in hospital. I do hope that you can get back to work in July - that's a great record, 43 years in the same job - well done!

I hope that you both enjoy your trip to the north of Scotland this week and that you manage to get some good weather.

Kind regards,

Jolamine 

Thank you; we had a fantastic time .The weather was very warm. I passed another mile stone to.Driving all that way. Ive not driven that far since last year.  I havnt been up to driving . My concentration wasnt very good. Maybe the chemo and stuff. 

Yes; my wife will come with me to this apointment. My last one was a telephone call. 

Hope you had a nice weekend, Enjoying the sunshine

David

Hi Davidah,

Well done you on driving all that way! It's always a great boost when you pass another milestone. I'm glad to hear that you enjoyed yourselves and, even managed to get some warm weather.

I have made the most of the weekend and the good weather by putting in bedding plants in the garden.

I'm glad to hear that your wife will go to your next appointment with you and hope that it will be good news, following your x-ray.

Kind regards,

Jolamine xx

So i had my apointment today with the consultant. He is very pleased with how im doing but thinks i shouldnt rush back to work.He thinks i will find it harder than i think. He says it maybe hasnt hit me what ive been through ( treatment etc)  and i should take a bit longer : but doesnt see why i shouldnt go back to work if thats what i want. So im thinking August now. 

The good news is my Cancer isnt active at the moment. My next scan is scheduled for November

David

Hi Davidah,

I am delighted to hear that your cancer is not active at the moment and, I'm sure that you will have been very relieved to hear this. It is also great news to hear that the consultant doesn't see anything to stop you from returning to work. 

It does sound as if you've been through a lot in the way of treatment and this does take more out of us than we sometimes realise, so you're probably best leaving your return until August. Still, I'm delighted to hear that it was all good news after the worry you've had over the past few weeks.

Could the consultant explain what caused your scan to show fluid around the lung?

Jolamine 

The consultant showed us the scan and there was a lot of fluid. He put it down to the  bad reaction id had from  the immunotherapy. I was in hospital for a week on oxygen.  Then on steriods for 2 months In January.  He was happy it had cleared away on its own.

Thats what helped me put on weight. The steroids. I was down to 10 stone. No appetite.  Now im back up to 13 stone 

David

Hi Davidah,

This is a step in the right direction. You would put on weight with the steroids, but if you continue your walking you should eventually lose this. I put on 6½ stones with my treatment, which I finished 4 years ago. Between watching my diet and exercise I've eventually managed to lose it and feel so much better now.

Take heart in the fact that you've had some good news.

Kind regards,

Jolamine