Feedback from those wanting a double mastectomy

Hello, I was diagnosed with breast cancer in 2014. Had a mastectomy, chemo and tamoxifen. Seven years later I'm still trying to get a mastectomy on the right side. Mentally I'm finding it very hard to deal with how they've left my breasts. They are so different. It is so obvious; one is much bigger than the other. Then there is the fear of reoccurrence as my breast is always lumpy. They did reduce it about 5 years ago. During the op, they moved the nipple which is now very sore as it rubs against my bra and clothes. It has affected my life - put it this way, I'm surprised my partner is still with me, bless him.

I've been added to the waiting list to have flap procedure, taking fat from my belly. This depresses me even more. Why they think a scar across my belly is preferable just doesn't make sense to me.

My reason for unloading here is for some feedback on how others feel, if people feel similar, how did they get on? 

I'm thinking about doing a psychological research paper (I'm an undergraduate) as I certainly feel the procedure should be offered to patients who are adamant about it. (I recently read papers on Parkinson's and the patient experience) I doubt I am the only one - so thoughts would be appreciated. 

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    Hi Hollis,

    A very warm welcome to our forum. You raise an interesting point and the outcome of a research paper on this topic would highlight some interesting points. I am so sorry to hear that you feel as you do. 

    I have had 2 bouts of breast cancer in the past 11 years. I had a lumpectomy the first time and had a double mastectomy a year later when I was diagnosed with another lump in the original breast. 

    I had also found a large but benign lump in my other breast 6 months after my first op, so my surgeon was quite happy to carry out the double when I asked for it.  This is a decision that I have never regretted. Having had the 2 procedures so close together in my right breast, it still looks a mess though.

    The fear of recurrence is always with us, irrespective of what procedure we have. You are certainly not the only person to have this problem. There are a number of posts from ladies who have had a single mastectomy, who would still have the double if they could.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

Reply
  •  

    Hi Hollis,

    A very warm welcome to our forum. You raise an interesting point and the outcome of a research paper on this topic would highlight some interesting points. I am so sorry to hear that you feel as you do. 

    I have had 2 bouts of breast cancer in the past 11 years. I had a lumpectomy the first time and had a double mastectomy a year later when I was diagnosed with another lump in the original breast. 

    I had also found a large but benign lump in my other breast 6 months after my first op, so my surgeon was quite happy to carry out the double when I asked for it.  This is a decision that I have never regretted. Having had the 2 procedures so close together in my right breast, it still looks a mess though.

    The fear of recurrence is always with us, irrespective of what procedure we have. You are certainly not the only person to have this problem. There are a number of posts from ladies who have had a single mastectomy, who would still have the double if they could.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

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