No cell changes to CIN1 in 4 months...

Hi everyone,

I had a LLETZ treatment for abnormal cells back in 2015. Fast forward to 2019 and I was diagnosed with CIN3 and treated with LLETZ in Jan 2020. Six months (ish, due to COVID), I had a follow up smear which showed HPV but no cell changes. They invited me for a colposcopy (due to the HPV persisting after LLETZ) which I had in Jan this year. I've been told I have CIN1 cells and should come back for a smear in 12 months. 
 

I feel like I'm stuck in a never ending cycle. More so, I'm scared I've gone from no cell changes to her CIN1 in 4 months. But no one else seemed to be concerned about this. Just need some advice and reassurance
 

  • I'm very sorry for how this making you feel Ranchababs.

    I really hope some of our members who have been in a similar position will offer their support and advice to you soon but if you feel it may help to talk things through with our team of cancer nurses then you're very welcome to give them a call on 0808 800 4040 between 9a.m - 5p.m. They'll be available from Tuesday onwards.

    I hope this information I've found about cell changes will give you the reassurance you're seeking at this time as well.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi Ranchababs

    I'm in the same position as you. I had my smear in January and got my results telling me I had HPV and no cell changes so was classed as low risk. I then started to experience some irregular spotting, changes to periods and sometimes bleeding after sex. As per the letter I received I called my GP who did an examination and referred me to gynaecology as she thought I had a polyp, so 6 weeks later seen the consultant who said I have a large and nasty looking nabothian cyst but would leave it 6 months to see if it gets bigger. I complained as using those words to describe it and also not really being told what it was other than to google. I continued with the strange spotting that I have never had before and a nurse told me it is normal and tried to pass it off as worrying about nothing. Now after it took them 5 weeks back in September to find out I had thrush I wasn't very confident in what I was being told. I decided I was going to go private which required my to get a copy of my cytology results to give the consultant. I was shocked to see that it said I had high risk hpv when I was told before I was low risk. I had a private colposcopy at the start of June and the consultant has confimred today that I have CIN1 changes and high risk HPV so we'll wait 12 months from my original smear to retest. Like you I am concerned as it has only taken a matter of months for CIN1 to develop so who is to say that in another 6 months it isn't CIN 2 or 3 or worse.

    Sorry its not advice but I thought I would share mine with you. You're the only person I have read so far that has had a similar change so quickly