Hi there ..

So so sorry your going through this heartbraking time at the moment... my granddaughter had the same diagnosis last Feb... and we all had the same situation most of the time, but she was only 17 then, and at least her mum was allowed to see her ... but because they go through so many treatments, they have to stay as well as possible for their amune system is compromised... so to keep them as safe as possible,  esp now this new covid is even more transfurable , they will do anything so as he stays covid free ..

Now what we did was get "what's ap" on their tablet, so we could all face time .. you can actually see each other ... and although not as good as a hug .. you have face to face conversation .. and the calls are free .. please know, he will be very vulnerable to infection for a long time ... it's not just treat and all's well .. it's a long old road ... but face time will really help ... sending you positive thoughts .. hang on in there .. Chrissie x

Thanks Chrissy.  I have set him up on facebook so he can call at any time,  I just keep hold of my tablet with a 4G connection.  Sometimes this can be even more stressful as he can call when he is really low and you just want to hug him but you cannot.  Yesturday was bad as they had just come up with the treatment plan and what could have been managed in a home environment is not possible with Covid.  He also is still not managing to control his tempertures so he gets spikes when he feels ill and is less able to cope,  When I turned on the news and saw all the poor people whose relatives are too ill to respond and saw some of the posts on this web site I realised how lucky we are to have the opportunaty to communicate even if it does not involve a hug.