New Leukaemia diagnosis

My husband was diagnosed with Leukaemja on Christmas Eve.  Due to Covid he is completely isolated and miserable.  Wd do communicate by facebook but he needs a cuddle.  My son has stayed around to support me but he is all alone.  His treatment plan means atleast 5 weeks in hospital if not more.

  • Hi there ..

    So so sorry your going through this heartbraking time at the moment... my granddaughter had the same diagnosis last Feb... and we all had the same situation most of the time, but she was only 17 then, and at least her mum was allowed to see her ... but because they go through so many treatments, they have to stay as well as possible for their amune system is compromised... so to keep them as safe as possible,  esp now this new covid is even more transfurable , they will do anything so as he stays covid free ..

    Now what we did was get "what's ap" on their tablet, so we could all face time .. you can actually see each other ... and although not as good as a hug .. you have face to face conversation .. and the calls are free .. please know, he will be very vulnerable to infection for a long time ... it's not just treat and all's well .. it's a long old road ... but face time will really help ... sending you positive thoughts .. hang on in there .. Chrissie x

  • Thanks Chrissy.  I have set him up on facebook so he can call at any time,  I just keep hold of my tablet with a 4G connection.  Sometimes this can be even more stressful as he can call when he is really low and you just want to hug him but you cannot.  Yesturday was bad as they had just come up with the treatment plan and what could have been managed in a home environment is not possible with Covid.  He also is still not managing to control his tempertures so he gets spikes when he feels ill and is less able to cope,  When I turned on the news and saw all the poor people whose relatives are too ill to respond and saw some of the posts on this web site I realised how lucky we are to have the opportunaty to communicate even if it does not involve a hug.

  • Yea .. hold on to that thought ... I know our Jess coped better when she saw us coping ... even if we were emotional and scared too .. that's normal ... when you come on here, you see how many are going through this journey,  in so many different ways ... your never alone here .. and we do understand .. we've been there .. 

    So when you need advice or to vent, just come on here and let it all out .. then try to be positive with your hubby .. you have to know , this is a marathon, not a sprint ... so you need to care for your heart too .. I've been on both sides of cancer ... for me, it's far harder seeing those I love go through it .. but I've been through my cancer journey too .. still am ... I'm here most days if you need a chat ... 

    Talking is so good, and try to share feelings with your son .. he'll be hurting to ... and confused and scared ... so if you listen to each other .. share tears .. admit your both scared... and hold on together .. you will need each other ... we all held on together ... so sending you a vertual hug.... Chrissie x