Hello how are you im in the same situation as you I've got a reading of 90 I'm terrified of what's ahead of me!! 

Hi,

Everything turned out fine for me and it was a false alarm. I've been told that it's not a very accurate test and many other things can cause a false high reading.

Easier said than done but try not to worry. Take care

Thanks so much for coming back to me wish I could just switch my mind off many thanks again x 

Wishing you all the best. Take care x

Hi There... My mind is on overtime at the moment too. I am all over the place. So i have suffered lower back pain for a couple of years, then last March suffered the most horrendous pelvic pain. The only way to describe it is like heavy contractions. I went to the hospital and had a CT scan. They said all was ok and sent me home with pain relief. After a week i was okish. I would have a day here and there with pelvic pain then in November boom the excrutiating pains were back. I called my doctor who prescribed me buscopan !!! the next day the doctor called me and said that my scan in March had shown fluid in my uterus and she wanted me to go for an ultrasound and have bood tests. Blood tests showed high CA125 ( I'd  never heard of it before) and us scan showed fluid. I recieved a call from a gynaecologist saying that i needed a transvaginal scan. So with a few more months of back pain and pelvic pain i had a scan at the end of March. I was then booked for a hysteroscopy as the scan showed significant endometriosis, fluid in my uterus, they couldn't couldn't find my ovaries and a broken coil buried deep in my muscle( I supposedly had my coil removed 7yrs ago under a general whilst having a vaginal repair) i'm 50 and also 5 yrs postmenopause. My CA125 levels keep fluctuating. So 2 weeks ago went to have a hysteroscopy and my uterus has a thick membrane blocking it. My consultant has now rushed me in for another hysteroscopy under general as she said I have so much going on there. I am worried sick but am holding it together as i do not want my children or grandchildren to think that I'm worried.

Best Wishes x 

It's just the worry isn't it I'm trying hard to be on top of it!! You take care when is your next procedure?? Keep in touch xxx

It's just the worry isn't it I'm trying hard to be on top of it!! You take care when is your next procedure?? Keep in touch xxx

It's just constantly there.. I'm keeping myself busy as much as I can... I'm not able to exercise due to my back pain and drag on my tummy.  So ... I had my pre op assessment on Monday for my procedure on 16th .. but had a call on Tuesday saying my CA125 levels were up and they want me in on Saturday. Due to having to isolate for 3 days before an op I've arranged work etc so I said no I would stick with weds... so will find out for sure what's going on then.. thanks for responding and allowing me to unload all my woes x

Unload away I feel exaclt the same it's just heavy isn't it!! What was your ca125 results ?? What have they said is next?? I'm just waiting so overwhelming not knowing big hugs my lovely xxxx

I will have the hysteroscopy on Wednesday. Going to be taking biopsies, having a good look and trying to remove the broken coil that shouldn't even be there. My Ca125 has been 90 then 35 then 65 then 70. From what I can gather endometriosis can cause it to rise. I'm just confused by everything and find it very overwhelming. Enough about me... what is next for you. What have they said xx

I'm just waiting for a consultants appointment I've booked one private as well as I was told it could be ages then I was told it would be two weeks my ca125 was 90 but it's only been one test?? Hope it all goes well for you chick keep in touch xxxx

I will let you know what they say/find Wednesday.. here for you if you ever need to unload. Please keep me updated with yr progress hun xx

Aaahh thanks will do I've sent you a friend request as well let's keep in touch we can do this xxxx 

I'm 49 and also so worried.  I missed a period in February then since March have been bleeding everyday.  My test result was over a hundred and a have a full pelvic scan on Tuesday.  I've not really eaten for a week I'm just so frightened.

So sorry to hear this it's just awful isn't it!!! I totally understand what you are going through and the waiting, I'm waiting for a consultant appointment it's meant to be two weeks but I'm sure I've now waited longer ? I've booked a private consultant appointment also as I just want to be seen it's just terrifying please keep in touch xxxx

How are you getting on?? Still on for weds??

Hi.. yes still on for Wednesday. First day of isolation. Just waiting for the courier to collect my covid test. If that's negative, which it should be but always a bit tense as I work at an international boarding school, then Wednesday I should know exactly what is going on and have some answers. I'm grateful for the weather but know the next few days are going to drag. How are you ? what date are you due to see the consultant x