osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

Parents
  • Hi all, 

    Not a sufferer myself but currently supporting my dad through his treatments. 

    unfortunately due to age and findings of a heart murmur during testing, it was decided he was not fit for the operation. So chemo and radiotherapy it was. with the 6 weeks completed and some painful weeks after, on his first round of PET scanning and endoscopy he was told there were no signs of the tumor remaining. 

    unfortunately we received the news today that it has returned and that no further treatment to the area is possible due to various risks. 

    wondering if anyone on here has experienced similar? 

    dad has been seriously struggling with his eating and has lost a lot of weight, mainly down to mucus style build up constantly in his throat. We have been prescribed something that will hopefully help with this and dad is booked in for a stent to be inserted in a few weeks.

     A little lost after todays news, writing this whilst being unable to sleep. Would be great if anyone has info of similar experiences. 

    i wish everyone within this group nothing but good health. Thank you to those taking the time to read this. 

Reply
  • Hi all, 

    Not a sufferer myself but currently supporting my dad through his treatments. 

    unfortunately due to age and findings of a heart murmur during testing, it was decided he was not fit for the operation. So chemo and radiotherapy it was. with the 6 weeks completed and some painful weeks after, on his first round of PET scanning and endoscopy he was told there were no signs of the tumor remaining. 

    unfortunately we received the news today that it has returned and that no further treatment to the area is possible due to various risks. 

    wondering if anyone on here has experienced similar? 

    dad has been seriously struggling with his eating and has lost a lot of weight, mainly down to mucus style build up constantly in his throat. We have been prescribed something that will hopefully help with this and dad is booked in for a stent to be inserted in a few weeks.

     A little lost after todays news, writing this whilst being unable to sleep. Would be great if anyone has info of similar experiences. 

    i wish everyone within this group nothing but good health. Thank you to those taking the time to read this. 

Children
  • Hello James,

    I’m so very sorry to read that your dad has Oesophageal Cancer. It is overwhelming and very difficult to be the carer and you are obviously supporting your dad as much as you can. The cancer chat site is helpful. this particular thread is quite old so you may find more answers on another post. I found the MacMillan nurses on their support line helpful. There are also charity organisations like Maggie’s that specialise in cancer support. The upper GI team should be able to give you contacts to offer support for you and your dad. It’s hard but try to take card of yourself too so you are able to help your dad.

    I hope you don’t mind but I always sign off with keeping the faith 

    Milly

  • Hi Milly, 

    Thank you for your response and kind words, much appreciated. 

    I will certainly look at the support networks you’ve mentioned, have spoken to macmillan nurses before but the others are new to me. 

    Dads lucky we have a close family around us, so there’s a lot of support. Just wish he wasn’t on this journey. Going from all clear 2 months ago to it returning has hit us all like a bus. 

    Thanks again for the info you’ve provided, really kind of you. 

    best wishes. 
    James