osophagus cancer diagnosis

Hi,

I have recently been diagnosed with oesophagus cancer stage 3 and have come across this forum while googling, since the middle of September, I have had a plethora of tests and have been very well treated by the hospital staff, I’m starting my FLOT treatment in 9 days’ time a regime of 4 rounds 2 weeks apart then hopefully followed by surgery and then another FLOT regime.

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  • Hi guys. Sending love to you all. We have just lost my mum to this cancer after only 6 months post surgery. My advice push for the chemo after and push for all the scans you can get after too. If this had been possible for mum then she might still be here. Xx

  • Hi

     

    I too would advise, push push push.  My brother had been visiting his GP since March with fears of this dreadful cancer and was pooh poohed and told it was acid reflux.  Eventually at the end of August he had an endoscopy and a biopsy.  By this time he had lost 1 and half stones in 6 weeks.  He was rushed into hospital on 20th September, and passed away on 25th October without having had any treatment.  I could go into far more detail but would not wish to distress anyone on this forum.  It was obviously too late for him and I find it extremely upsetting that in spite of him doing the right thing and going to his doctor, (and advising the doctor that his paternal grandfather had died of the same disease) he was sent away and not seen to in sufficient time to give him a few months quality of life.  

     

    Make a nuisance of yourself, push and push for scans and tests and treasure every moment you have xx

  • Hi Lee,

    So lovely to hear from you. How are you and your family? Is it still fairly warm in Spain? I hope you’ve had a better year at your shop.

    Can’t help saying still

    Keeping the faith

    Milly 

  • Hi Milly,

    It still feels like a nightmare...we just all try to keep as occupied as possible to keep in control - when not working in the shop, I keep starting projects with my Mum to keep us occupied....we have just finished building a patio and now we have just started to retire our porch... it's amazing what you can do with YouTube!

    The shop was busy over summer which was very good and needed but now it's gone quiet - this is the consequence of brexit-as no new Brits areusu residing in Spain ....only tourist.

    It's been over 18 months now and it feels so surreal and just as bad....I guess when you have something so good, the negative of that is you have so much to lose.

    Thanks for asking about us and I hope you all the luck possible you all keep winning the battle.

    Lee

  • Hi Lee,

    You have all experienced a very traumatic event losing your beloved dad/husband. I think I’ve said my mum died from cancer in 1986 she was 51 and I was 24. So I can relate to your loss and losing someone too soon is a double blow. Your dad would be so proud of you all and your continued support for your mum despite your own grief. But naturally you wish he could be proud with you now. Keeping busy is good but I have learnt giving yourself time to grieve and look after yourself is also important. You were obviously so close so it isn’t something you ‘get over’. I hope you have support too Lee. 

    Thank you for posting and continuing to wish us all well despite your own tragic loss. 

    still

    keeping the faith

    Milly x

  • Hello All,

    I am back again….just over two years since dads successful operation and given the “cancer free” badge and it’s back.

    I am very sorry to hear about your dad Lee, I know we were on this journey together back in 2021. My thoughts are with you.

    As we all know the OC is a fast mover so since the beginning of December things have really moved on. Initially dad was being offered chemo but on the 23rd of December had to have an NG (feeding) tube inserted and now they are going to start radiotherapy on Monday. I have went back through a lot of comments but can’t see anyone who has had radio to treat OC on here? 

  • Hi Lee,

    I’ve not posted on here for a few months but as summer approaches I wondered how you and your family are doing? I hope your shop is still going despite the drop in customers out of season due to the dreaded Brexit affect.

     
    I’ve not heard from anyone lately from this thread as I guess peoples situation changes. I’ve private messaged Hit’s  but as yet no response which does concern me but I guess she may have moved on from needing this link.  

    Anyway you and your family are in my thoughts as is your dear dad who I know you will forever miss. Take care

    still keeping the faith

    Millly

  • Hi Milly,

    It's very good to hear from you.

    Yes all 3 of us are doing the best we can - it's very difficult and strange now, but we have carried on the best we can. My Mum's birthday is today so she has gone back to Derby to see her family for a week. I was only thinking of this forum a few weeks ago, thinking it has been very quiet - I really hope the fellow travellers on this journey are doing ok. How is your husband doing? We are starting to get busy now in the shop but still feeling the deep reprocussions of Brexit!

    Thanks for asking about us.

    Lee

  • So lovely to hear from you Lee -you won’t believe this we are from Derby area. My husband is from Chaddesden sand I’m from Melbourne Derbyshire! We support the Rams who’ve just got back in the Championship S you may know!

    Yes life is never quite the same - 38 years since my mum died aged 51. You feel cheated for them and you - well that’s how I still feel. Your dad was clearly a massive part of your lives and I’m so sorry that  he had this awful cancer.

    We are Ok thanks for asking especially in your circumstances . It’s 3 years since Kev had his first operation the Oesophagectomy . So far so good. We went to Vietnam, Cambodia and Thailand in January and February - a very humbling and exciting experience. 
    We are currently fence painting something Kev thought he’d never be able to do again. 

    Im still keeping the faith and everything crossed,

    Take care

    Milly

  • That's good to hear Milly. When you messaged I was in Alicante with my wife and as I read your email (and especially Scott's previous email, all those daily memories of complete heartache and fright came back and we both sat there crying out eyes out in the middle of Alicante, whilst having a beer - quite comical now we are back home and thinking about it!

    Yes we was brought up in Nottingham and then moved to spondon - a small world!

    Again, if you are anywhere near Alicante....pls msg me and we can meet for a coffee - it feels like we have a lot in common (although it is on the worse circumstances possible!)

    Take care and keep the faith 

    Lee

  • Hi Lee, 

    Sorry if I upset you both.  Thanks and if you come back to Derby just message me too.

    yes still keeping the faith

    Milly

  • Hi y’all ️ ️ ️.

    we are Still Here . I must admit to really disengaging with the board! I thank Millie for drawing me back with a PM.  Why I disengaged?? I guess after Andi and a few other losses around me, I felt I needed to heal a bit emotionally. I tell you what cancer is one beast, BUT for the on lookers it is the emotional stuff that is the incredible, unexplainable roller coaster! Still feeling the effects, today 4 yrs on
    He is now 4 years since d(iagnosis) day ! Still on the pints! He tells me it is to ‘help wash any food through’  ye right sonny……. 
    A few hernia ops, wandering bowel through the diaphragm- which was causing the coughing, now firmly put in its place with a mesh . We still look at each other and think WTH happened there! , always will I guess.

    whoever is still here , keep keeping the faith. ️ ️

    hilts

Reply
  • Hi y’all ️ ️ ️.

    we are Still Here . I must admit to really disengaging with the board! I thank Millie for drawing me back with a PM.  Why I disengaged?? I guess after Andi and a few other losses around me, I felt I needed to heal a bit emotionally. I tell you what cancer is one beast, BUT for the on lookers it is the emotional stuff that is the incredible, unexplainable roller coaster! Still feeling the effects, today 4 yrs on
    He is now 4 years since d(iagnosis) day ! Still on the pints! He tells me it is to ‘help wash any food through’  ye right sonny……. 
    A few hernia ops, wandering bowel through the diaphragm- which was causing the coughing, now firmly put in its place with a mesh . We still look at each other and think WTH happened there! , always will I guess.

    whoever is still here , keep keeping the faith. ️ ️

    hilts

Children